If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

PVCs in a row

Collapse

About the Author

Collapse

AustinB Diagnosed with HCM at the age of 10, Am now Currently 19. Mom Diagnosed with HCM when she was a kid, also had a hole in her heart. Trying to have a strong heart with a diseased heart. Find out more about AustinB
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • PVCs in a row

    Welp, Here goes my anxiety again, I was laying in bed after taking my 100mg Atenolol 30 mins before, and all of a sudden my heart skips like 2-3 beats in a row, i spring out of bed ready to call 911 or something because im afraid my hearts gonna stop, well at this point im out of bed my hearts racing really hard, It stops skipping beats but its racing super hard cant ignore it, i finally decide to try and lay back down but now im all tore up and afraid to sleep, Is this because of my HCM? Why hasnt my atenolol stopped them? They continue to happen after my 100mg Atenolol sometimes, and i dont understand what to do because they are scary and especially when they happen in a row, i dont mean to comment so much on here but my nerves are shot after what just happened.
    Last edited by AustinB; 09-26-2018, 10:54 PM.

  • #2
    Hello Austin, Yes feeling skipped beats can be scary if you don't understand what is happening. Especially if there are several in a row. Even normal hearts can have a number of PVCs per minute. In HCM an increased number of PVCs can be common. PVCs can also increase in number for various reasons...too much caffeine....anxiety...Electrolyte imbalances.
    That being said, it is important to let your cardiologist know if you are experiencing this increase in number and several skipped beats in a row on a recurring basis. You may need to wear a heart monitor for awhile to get to the bottom of the issue...and/or you may need a medication adjustment. Do you have a cardiologist that is an HCM specialist? Have you been evaluated at an HCM center of Excellence? It is something you may want to consider.
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani

    Comment


    • #3
      I did bring this up with my Cardiologist back in January and he gave me a one month Holter Monitor, i wore it for a month and gave it back and results came back and he told me that “I have palpitations within Normal sinus rythm and Occasional PVCs which dont harm nobody and is completely normal” I also had one episode of Sinus tachycardia which he said couldve been from my anxiety which was normal, I just guess with my anxiety its hard to believe its normal.

      Comment


      • #4
        It is a difficult thing when your heart is involved to be relaxed about it. What I had to do was sit down with my cardiologist and decide what is my NEW HCM NORMAL. For me it was chest pressure or pain after most meals.....So I did not plan activities after meals.....I also I got to know exactly how that pressure/pain felt and knew I did not have to go to the ER. I also had PVCs every 4 th beat after any exercise....and they went away wth rest. My Dr and I knew my baseline and if my chest pain changed or my PVCs got worse or more frequent.....I was to notify him. Also, the HCM heart tends to beat very hard , pound after meals or exertion. Many of these things can be decreased with changes in medication.
        Are you having more PVCs or more palpitations than you had in January?? January was a long time ago....also at your age your heart can still be growing and changing So as the heart changes, the symptoms can change.
        Start working on anxiety and stress reduction techniques......this will help your whole life, not just your heart. Also if you are good at applying anxiety reduction techniques it will help you differentiate between anxiety and physical causes of symptoms. Define your new HCM normal.....how does your heart react to meals, excercise, excitement etc.?
        Make a list of ALL your questions and take them with to your next cardiology appointment. If you don't have an appointment coming up soon..... maybe you need to make one.
        After years of symptoms:
        Officially Diagnosed HOCM 2006
        Myectomy 3/11/13 at non-COE
        Extended Myectomy 7/23/14
        At Mayo with Dr. Joseph Dearani

        Comment


        • #5
          I remember my Cardiologists always telling me that my heart is still the same every year it hasnt gotten any worse, I rememeber him telling me that in January as well, He told me that my HCM ha stayed the same since i was young, he said that he will follow up every year until im older, but he had told me he doesnt think my heart would change within a year and told me that i should only really worry if im passing out or feel like im going to pass out (Which i dont ive never passed out or felt that way even with PVCs) and then thats when he wants me to notify him is if im passing out, I dont know if my heart is bad or not all i know is i have mild left wall hypertrophy my right ventricle and septum are normal (With Palpitations in NSR and Occasinal PVCs), I feel like palpitations and PVCs have gotten worse but then again i also think that since ive been told im okay and not gonna go into SCA soon that maybe im just more focused on my heart thats why i feel these palpitations more i dont think they got worse, So am i just anxiety filled that im worse then i actually am?
          Last edited by AustinB; 09-27-2018, 11:37 PM.

          Comment


          • #6
            It's not unusual for symptoms to change over a years time even if your numbers on an echo have not changed.....or it could be like you said you are just more focused on your heart. If you can't ignore the episodes, then keep a note book of when they happen, how often they happen how long they last and what they feel like.
            Keep a notebook of data to give your cardiologist. The trick is to write the episode down and know you have done everything you can do and move on, lead your life without worry......worry will not accomplish anything. Be like a scientist and record the data and then after you have a good amount of data take it to your cardiologist and see what he thinks.
            After years of symptoms:
            Officially Diagnosed HOCM 2006
            Myectomy 3/11/13 at non-COE
            Extended Myectomy 7/23/14
            At Mayo with Dr. Joseph Dearani

            Comment


            • #7
              I also wanted to ask Because im scared of sudden cardiac arrest with my HCM, ive been told i dont have Afib or VT from my one month holter monitor back in January, but like i said before Palpitations and PVCs (Ive also noticed if i sit still i can see my whole chest shake from my heartbeat, sometimes it moves my whole body) , im more concerned that the PVCs will cause SCA thats why i worry so much but every ER doctor and my Cardiologist just say they are normal even in people with HCM or heart disease and dont show no threat with SCA, is this true? because research ive seen shows they can harm you if you have an underlying heart disease.

              Comment


              • #8
                Hi Austin,
                You never said whether you are being seen by a cardiologist that specializes in HCM.....at an HCM center of Excellence. I think that doing this might make you feel more comfortable with what is normal for HCM and what is smething to be concerned about. Most regular Cardiologists aren't as well versed as an HCM center of Excellence. Also important in determining changes in treatment are symptoms of shortness of breath, chest pain, exercise intolerance and fainting or near fainting. You may want to call the HCMA office and speak to Lisa about recommendations. Yes , a certain number of PVCs per minute are normal.
                After years of symptoms:
                Officially Diagnosed HOCM 2006
                Myectomy 3/11/13 at non-COE
                Extended Myectomy 7/23/14
                At Mayo with Dr. Joseph Dearani

                Comment

                Today's Birthdays

                Collapse

                Working...
                X