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Dealing with anxiety of pacemaker going off

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LindseyO Find out more about LindseyO
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  • Dealing with anxiety of pacemaker going off

    I am searching for help and some ideas to help my father with the anxiety of his pacemaker goes off. Pre-open heart surgery it went of frequently and really fed into his fear. He is very active (he works) , loves to work in the barn, and generally a happy person.Recently his pacemaker went off for the first time since open heart surgery (3 years). It was completely out of the blue and has really shook his confidence in himself/box. The doctors said he had an "Electrical Storm" which is very common but they don't know a lot about.

    I am searching for people who have experienced this so he knows he is not alone and find ways to help him cope with the anxiety.

  • #2
    Hi Lindsey,
    i'm wondering if when you say " pacemaker" you mean ICD .....Internal Cardiac Defibrillator. A pacemaker helps people with low heart rates and certain types of heart blocks have a regular heart rhythm...it can activate many times a day or week whenever someone's heart rate is too low to meet their body's needs and usually provides a pretty smooth transition. An ICD actually senses inadequate ventricular heart rhythms and gives the person an electrical shock o convert them to a normal rhythm......the shock is quite noticeable and anxiety producing. Some people have a combination pacemaker and ICD together.
    I would say the best place to look for the type of support you mentioned would be on Facebook or on the internet with a search for an ICD support group.
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani

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