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When it rains....it pours!!!!


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  • When it rains....it pours!!!!

    Well I got a little news today, that maybe shouldnt have been unexpected. I brought my 7 week old daughter for an echo and they airing on the side of caution. They said her heart function is excellent, but her septum is a bit "juicy". He explained to us that if he didnt know the family history, (he has followed me my cousins, and my cousins kids) he would say everything looked great. He explained that all babies have a thick septum due to the heart being over worked in the womb, but in time it goes away. But again he said he would be very dishonest if he said that this is the case. We scheduled a echo for March, where they will sedate Kylie in order to get better pictures, and at this visit he is gonna have her geno typed from Dr Seidman. I guess we took the news okay, as NOW and only NOW do I know what a parent feels like to get a not so good report. But all in all I think everything will be okay as the Dr stated that if she has HCM he will be agressive as possible to see she does well.


  • #2
    Re: When it rains....it pours!!!!

    Dear Bryan

    I sure hope that Kylie's echo is fine. Just remember though, if it isn't, she'll still be fine. Hugs to you and your wife.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      Re: When it rains....it pours!!!!

      Good luck Bryan, dealing with this in your own body is one thing, but having to worry about it in your babies is another thing.
      I wish you both well.
      Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
      So if you are capable of thought then you are capable of great things
      Good luck and stay well.


      • #4
        Re: When it rains....it pours!!!!

        I have started writing my responce about 7 time... I am simply sorry that your little one appears to be "a member of the club". It is a completely different picture then looking at yourself and in someways you know better than anyone what she has in store (the good and the bad).
        I KNOW this ... she has a daddy that is going to take wonderful care of her and is prepared for this task.
        I hope your wife is dealing well and that she knows we are here for her too.

        Give the baby a kiss from her unofficial "aunt Lisa" (yes I just gave myself that title...can I keep it?)

        Be well,
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)