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Please help, my heart is breaking

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jonshapiro Find out more about jonshapiro
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  • #16
    Re: Please help, my heart is breaking

    What was interesting was my doctor said my septum is not that thick. Really not even thick enough to scrape. But when I exert myself my heart pumps according to my doc, 10 times harder than it should and then the upper portion of my septum swells 3 times it's size pushing my valve sideways. I am so glad I will be able to communicate with others that have my condition.
    I would like to hear from others. Thanks.

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    • #17
      Re: Please help, my heart is breaking

      Bill, have you called LIsa yet? She can help you get with a specialist who can help you.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #18
        Re: Please help, my heart is breaking

        So Jon how are you doing this week? I hope you are feeling as great as I am. I was surprised at how many people have this problem yet it's not one of the poster boy diseases. While I was in the hospital my doctor's partner was the oncall cardiologist. He said "Your name sounded so familiar and then realized we are using you as a case study for our cardiology group (club). I felt kind of embarresed after that. My wife thought it was funny. Let us know how you are doing. Keep smiling. I would use one of these emoticons but they don't seem to work.
        Have a great week.

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