If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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ipontific8 Find out more about ipontific8
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  • Intro

    Hi, I just found this excellant site today and decided to join. I was first diagnosed last year at age 50 with mild HCM. The cardiologist said it's rare and "your the kind of person I'd like to keep followup on" to learn more about it. Anyway, I would like to hang out here and see what I should expect on down the road. Right now I'm just limited to jumping into activity quickly - can't climb stairs quickly, sports, lifting heavy objects. I go to the gymn, do the treadmill and ski machines but start out slowly for 20 minutes before doing any cardio level exercise.

    -- Thanks for having me here,

    ipontific8
    I fix computers - not people

  • #2
    Re: Intro

    Hi there. It's nice to have you here. I recommend you call Lisa Salberg at 973-983-7429 and talk to her for a bit. She's very knowledgeable about HCM and all it entails. She's the HCMA president, has several family members who have had HCM, and also has HCM herself. I think you might want to see an HCM specialist to discuss your case and to see how much cardio workouts you should be doing. Most people with HCM are restricted by their doctors from doing much as far as cardio goes. You might should be leaning toward the walking and other lower intensity exercises than a ski machine.

    On a side note, I visited the Lompoc area last January and you have a beautiful area there. One of my very good friends lives there at Vandenburg Air Force Base. Again, welcome and we'd love to hear more from you.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Re: Intro

      Out of curiosity, do you have any symptoms? Also, what did your cardiologist mean by "You're the kind of person I would like to keep follow up on"? Was that for your sake, or his own education? Just curious...

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      • #4
        Re: Intro

        Welcome to the HCMA, we are happy to have you. It sounds like your doctor is interested in your care...and sometimes that is 1/2 the battle with HCM. I would concider an evaluation by an HCM specialist.
        Best wishes,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #5
          Re: Intro

          Hello... and welcome.

          Like Bert, i'm curious about what your doctor has said to you. What does your doctor mean when he tells you that you have a 'mild case' of HCM? For example, some doctors may consider my case to be 'mild' because my septum is only 1.5cm thick. But at the same time, that mere 1.5cm is producing a gradient of 100mm at rest, which is not 'mild' at all. When dealing with HCM, i tend to believe that you either have it or you don't... period. I don't like to see it categorized as 'mild' or 'severe', as that may lead to misconceptions concerning your treatment. But that's just my own feeling on the matter.

          Thanks for joining us here on the board, and i hope you feel comfortable in posting more in the future

          Jim
          "Some days you're the dog... some days you're the hydrant."

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