If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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lupines
lupines
lupines
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  • #1

    hello

    I am new here and browsing, thankyou lupines
    May the wolf be free..
    Tags: None
  • #2
    Re: hello

    Welcome to the HCMA. We're happy you found us.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment

    • #3
      Re: hello

      Welcome to the message boards. Please feel free to call the HCMA office if you need any further information.

      Kelly
      Life is 10% what happens to you and 90% what you do with what happens to you.

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      • #4
        Re: hello

        Thankyou for the welcomes.lupines
        May the wolf be free..

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        • #5
          Re: hello

          Welcome to the board. I am always happy to see new names! If we can help with anything just let us know!

          Be well,
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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          • #6
            Re: hello

            Welcome to the board. It's a great place for information and support. I'm in Huntsville.

            Dolly Y

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            • #7
              Re: hello

              In April this year I had an emergency quadruple by-pass and St. Judes mitral valve, they thought it went fine.. but 2 of the arteries that were used in the by-pass had blockages further up. So ... after 2 months of not being able to do what they said I could do they finally did a nuclear stress test and found the blockages, so 2 stents as well. During this time had 2 extra caths done where as they had formed a blood clot in my right arm (inside elbow). My question is this, ever since all this I am lucky to get 4-5 hours sleep a day, anything will wake me, anything. I am so very tired. I work anywhere from 10-12 hrs a day so I should be so exhausted as to sleep 8 hrs, but no.. dosent happen. Anyone had difficulty sleeping?I am a 45 yearold female. My father had a triple by-pass with a pigs mitral valve.
              Thankyou for any response's, Lupines
              May the wolf be free..

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              • #8
                Re: hello

                Welcome to the message board. It sounds like you've done amazingly well in a very short time for all that you've been through. You are also working very long days so soon after a major procedure. Sleeping problems have been a complaint from others from time to time. I'm sure you will get some input from others on this. Do you ever have a nite that you feel you slept really well, or is it always the same? Your body does have a lot of adjusting to do after big surgeries like this, plus you've most likely had a lot of different meds to deal with, whether temporary or ongoing. Linda

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                • #9
                  Re: hello

                  I am on 80 mg lasix, 75 mg plavix, 7.5 mg coumadin, 25 mg spiorolodact.Its almost every day, though I do have trouble with my sciatic nerve, am not taking anything for.
                  I have mentioned this several times to my dr., but so far no response. I just feel so whipped at days end.Thankyou, Lupines
                  May the wolf be free..

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