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lupines Find out more about lupines
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  • hello

    I am new here and browsing, thankyou lupines
    May the wolf be free..

  • #2
    Re: hello

    Welcome to the HCMA. We're happy you found us.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Re: hello

      Welcome to the message boards. Please feel free to call the HCMA office if you need any further information.

      Kelly
      Life is 10% what happens to you and 90% what you do with what happens to you.

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      • #4
        Re: hello

        Thankyou for the welcomes.lupines
        May the wolf be free..

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        • #5
          Re: hello

          Welcome to the board. I am always happy to see new names! If we can help with anything just let us know!

          Be well,
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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          • #6
            Re: hello

            Welcome to the board. It's a great place for information and support. I'm in Huntsville.

            Dolly Y

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            • #7
              Re: hello

              In April this year I had an emergency quadruple by-pass and St. Judes mitral valve, they thought it went fine.. but 2 of the arteries that were used in the by-pass had blockages further up. So ... after 2 months of not being able to do what they said I could do they finally did a nuclear stress test and found the blockages, so 2 stents as well. During this time had 2 extra caths done where as they had formed a blood clot in my right arm (inside elbow). My question is this, ever since all this I am lucky to get 4-5 hours sleep a day, anything will wake me, anything. I am so very tired. I work anywhere from 10-12 hrs a day so I should be so exhausted as to sleep 8 hrs, but no.. dosent happen. Anyone had difficulty sleeping?I am a 45 yearold female. My father had a triple by-pass with a pigs mitral valve.
              Thankyou for any response's, Lupines
              May the wolf be free..

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              • #8
                Re: hello

                Welcome to the message board. It sounds like you've done amazingly well in a very short time for all that you've been through. You are also working very long days so soon after a major procedure. Sleeping problems have been a complaint from others from time to time. I'm sure you will get some input from others on this. Do you ever have a nite that you feel you slept really well, or is it always the same? Your body does have a lot of adjusting to do after big surgeries like this, plus you've most likely had a lot of different meds to deal with, whether temporary or ongoing. Linda

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                • #9
                  Re: hello

                  I am on 80 mg lasix, 75 mg plavix, 7.5 mg coumadin, 25 mg spiorolodact.Its almost every day, though I do have trouble with my sciatic nerve, am not taking anything for.
                  I have mentioned this several times to my dr., but so far no response. I just feel so whipped at days end.Thankyou, Lupines
                  May the wolf be free..

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