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RE: dizziness

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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • #1

    RE: dizziness

    could anyone please tell me if getting dizzy or lightheadedness, with feet and hands going numb is part of this disease. I get it two or three times a day, did make an appt. with the doctor, but just curious, a new thing happening to me i guess, my heart pounds also when this happens
    thanks guys
    & gals
    shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9
    Tags: None
  • #2
    Re: RE: dizziness

    dizziness and lightheaded sure, numb feet and hands, not so much, but not outside the realm of possibility. definitely get checked out.
    s

    Comment

    • #3
      Re: RE: dizziness

      For some time I have wondered the same thing. Before going to the doctors I had lightheadness, dizziness and my arms and legs would become numb. Having been put on meds I no longer get lightheaded or dizzy to the extreme as I did. But the Arms and legs still get numb fairly easy. I asked my doctor and he did not seem to think it is connected. But I disagree I believe they are. My mother has a mild case HCM. She was diginosed after me and she has those symtoms as well. Her case does not require any meds, but if she did I think she would reduse some of her lightheadedness.


      Bright Blessings
      Bob

      Comment

      • #4
        Re: RE: dizziness

        Bob
        I take 200mg a day of toprol xl, and i was told that i have a mild case also, that's why i'm going to another doctor, i also have CHF, i think i've had this disease for years, doctors have always said i had asthma, until my heart murmmer got so bad, Even though this disease runs though my family like wildfire, i also am having some septal thinning, i just hope i'm not going into the end stage, but will find out next Thursday, my old cardio doctor said the numbness was not part of the disease, i also disagree . Make sure you see a HCM specialist, there are doctors out there that say they know about the disease, but doesn't know how to treat it, What form of HCM do you have? I have HOCM, i hope you are feeling well, you will find this is a very good site, and the people are wonderful, and have helped me a great deal
        Take Care
        Shirley

        If you need a name of a good dr. call Lisa our president she can help you
        Lisa is a wonderful Lady. She will do everything she can to help
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

        Comment

        • #5
          Re: RE: dizziness

          I to have been having some serious numbess. I was concerned about it about two months ago and had scheduled an appt. with a specialist per a refer. by my PCP. However, the appt. was for about a month a way and the symptoms disappeared. I cancelled and now they are back.

          Never had these symptoms until after I switched from Verapmil to Atenlol and Diovan. Glad to know it's not just in my head that this is happening.

          Thanks for sharing.

          Diana

          Comment

          • #6
            Re: RE: dizziness

            I have had a tingly left foot for the last 8 weeks. Its gotten a little better, but so have my 'norma' symptoms.
            Fx

            Comment

            • #7
              Re: RE: dizziness

              I've always had a problem with numbness and tingling... especially in my legs. The most bothersome situation is when both my legs fall asleep at the same time, sometimes while i'm standing on them. When that happens, i have about ten seconds to find a seat or i find myself on the floor. LOL. I get told over and over that it has nothing to do with HCM, but i really have to believe that the diminished capacity of the heart has something to do with it.
              "Some days you're the dog... some days you're the hydrant."

              Comment

              • #8
                Re: RE: dizziness

                Yeah, but Jim, remember - your heart is actually more on the "super capacity" side than diminished capacity side. It actually beats too hard. Hmm, another one to ask the big guys, huh?

                Reenie
                Reenie

                ****************
                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.

                Comment

                • #9
                  Re: RE: dizziness

                  Very true Reenie, but doesn't an HCM heart have to beat faster because of diminished capacity? And by regulating our heartrate with beta blockers, not only do we still have the diminished capacity, but our hearts are beating slower as well, therefore we get symptoms that you'd normally see with poor circulation? Not arguing, just asking
                  "Some days you're the dog... some days you're the hydrant."

                  Comment

                  • #10
                    Re: RE: dizziness

                    I think it's do to the valves and how much regurgitation one has, just a thought, because sometimes i can even be walking, for example in the grocery store, and the more i walk the more numb my toes become, i look down at them and there's no blood in every other toe and the bottom of my feet are very blotchy, it will stay that way at least 10 to 15 minutes after i sit down and prop my feet, to me that would indicate my body not getting the blood it needs, just a thought, may be wrong
                    have a great night
                    Shirley
                    Diagnosed 2003
                    Myectomy 2-23-2004
                    Husband: Ken
                    Son: John diagnosed 2004
                    Daughter: Janet (free of HCM)

                    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                    Comment

                    • #11
                      Re: RE: dizziness

                      Originally posted by mtlieb
                      Very true Reenie, but doesn't an HCM heart have to beat faster because of diminished capacity? And by regulating our heartrate with beta blockers, not only do we still have the diminished capacity, but our hearts are beating slower as well, therefore we get symptoms that you'd normally see with poor circulation? Not arguing, just asking
                      Jim, I am sort of hesitating to answer this. I'm gonna give my opinion, but I might be corrected later..... Here goes...

                      I don't think that an HCM heart necessarily beats faster. And the diminished capacity of an HCM heart I'm not too sure about either. I was under the impression that lots of the time beta blockers are prescribed in HCM'ers for softening the heart beat so that it can relax, rest, and fill more fullly with blood, not because you need to decrease the heart rate. That just happens to be something that comes along with beta blockers. Sort of like taking an aspirin for pain, yet having it work as an anti-inflammatory too. That said, you may be right that the slowed beating of your heart due to the slow down created by the beta blockers attributing to the "poor circulation" feeling in your feet and legs. I just don't know.

                      Reenie
                      Reenie

                      ****************
                      Husband has HCM.
                      3 kids - ages 23, 21, & 19. All presently clear of HCM.

                      Comment

                      • #12
                        Re: RE: dizziness

                        Reenie,

                        That's cool... i have a whole lot of respect for someone who can say 'i just don't know' like you did, rather than pretending they do know, and just blathering on about anything that pops into their head. Maybe someone will come along and open the windows of enlightenment for us

                        Jim
                        "Some days you're the dog... some days you're the hydrant."

                        Comment

                        • #13
                          Re: RE: dizziness

                          Reenie, I'll second that. Thanks for being honest. Your awesome.

                          Comment

                          • #14
                            Re: RE: dizziness

                            Isn't Reenie the awesomest? Ya just gotta love her
                            "Some days you're the dog... some days you're the hydrant."

                            Comment

                            • #15
                              Re: RE: dizziness

                              Originally posted by mtlieb
                              Isn't Reenie the awesomest? Ya just gotta love her
                              "Awesomest?" Is that even a word? LOL


                              Reenie
                              Reenie

                              ****************
                              Husband has HCM.
                              3 kids - ages 23, 21, & 19. All presently clear of HCM.

                              Comment

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