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dror Find out more about dror
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  • seeking for info


    Hi everyone.
    I am 46 years old male from Israel, and diagnosed with HCM.
    Recently I haven’t been feeling well and I am treated with Beta blockers and verapamil.
    My doctor suggested I will go through alcohol septal ablation, and yesterday I went through echo (valsalva) test. At the end of this procedure, my doctor announced me
    That I am not qualified for alcohol septal ablation.
    Tell you the truth I felt quiet lost and confused. I need to go back to see my cardiologist, and the next available appointment was at the end of September.
    Meanwhile I got the echo results, and quiet frankly I have no idea what its all about.
    Here are the results, does anyone have any idea what does it means ?

    “valves and related structures, mitral, Doppler, e wave, a wave.
    E wave – 102
    A wave – 65
    E/A ratio 1.6
    Conclusion report: limited study to r/o significant inducible lvot gradient.
    LV: good global systolic function. Concentric hypertrophy with slightly more pronounced basal septal hypertrophy (14-16 mm). no lvot pressure gradient was found at rest, and none was inducible by valsalva maneuver. Reversed e/a ratio on mv annular motion and delayed lv flow propagation suggest type II relaxation abnormality with pseudo-normalized lv inflow pattern.
    MV: delicate. No sam noted. Mild regurgitation. Some chorade from the antero-medial apillary muscule are attached to the mid septum (anatomic variant) “

    Does anyone knows what its all about ?

    Thanks.
    Dror

  • #2
    Re: seeking for info

    Do not be disappointed...It is not that your are not a good canidate because you are "too sick"... it is simply that you are not obstructed and therefore this procedure will not offer you any help.
    What medications are you on?

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Re: seeking for info

      hi Lisa,
      i am on beta blockers and vapramil, but it seems they dont work.
      Regards
      Dror

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      • #4
        Re: seeking for info

        Sometimes changing from one beta blocker to another will decrease your symptoms some. Ask your doctor about that possibility.

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

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        • #5
          Re: seeking for info

          Hi Dror,

          I hope you are well
          Meds are about the only option for Us. (no obstruction).
          There are alot of different combinations to try. Trust Me!
          I take, Inderol diltiazem lisinopril Hctz-spirnolatone along
          with Pain meds for my chest pain.
          Please try to find a HCM Dr if you are not right now.
          Check with a University in your area. If not. Ask your current Dr.
          Beyond meds there are few options depending on severity.
          Work with your Dr. Sometimes it takes a while to feel good again.
          Feel Good Soon

          Laura
          Laura Johnson

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          • #6
            Re: seeking for info

            Dear Dror,

            I want to second the suggestion that you consult a cardiologist who has a subspecialty in HCM. Lisa, do we have any names of such specialists in Israel? Or does the Israeli HCM organization? Should Dror call you or them?

            I say this in part because both my resting gradient and my gradient with Valsalva are pretty small--and my septal enlargement is also small at rest and with Valsalva. But when Dr. Shah measured my obstruction and gradient during a "stress echo" last year he found they were pretty large. He even told me, "I was surprised" by the degree of obstruction. The stress echo, by the way, can be done with physical exercise (bicycle pedals, for example) or with drugs like dobutamine.

            Additionally, Dror, there are many beta-blockers and calcium channel blockers on the market. It is well worth changing one's meds many times to find those which work best for each of us. Simply getting on the best drug at the best dose can make a world of difference. You want your doctor to help you with this.

            Good luck, Dror,
            Pat

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