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sandy DX 2002 Alcohol Ablation 2005 5 Family Members with same condition ICD 7-2014 V02 11 Find out more about sandy
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  • parking

    how hard is it to get a disabled parking permit? I have to walk a block to get into the building then up a flight of stairs to my office. I am beat before I start work.

  • #2
    Re: parking

    The procedure probably varies from state to state, but I am interested in this too. I would like to get one to use as needed.

    I have a 2 year old son, and when I am alone with him, and I have to carry him plus walk a long way, it is very hard for me., while when I am alone and don't have far to go, its fine.

    I would be interested in knowing how many HCM'ers have one.
    Daughter of Father with HCM
    Diagnosed with HCM 1999.
    Full term pregnancy - Son born 11/01
    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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    • #3
      Re: parking

      Good questions. I think you would need a statement from your Dr. to the fact you are "disabled" to the point you can benefit from a disability parking permit. That would then be taken to you motor vehicle administration to get the permit.

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      • #4
        Re: parking

        It works pretty easily. Go to your local department of motor vehicles (or whatever it is called in your state) or check online with them. The forms are pretty standard and you can usually download them. Then, take it to your HCM specialist or cardiologist and he/she will have to fill it out. From there turn it in and you are set. I got mine in 45 days in Massachusetts and there is no fee and here they are good for 5 years. Get one, it is a life saver!

        Doug
        NEMC's (Boston) First Myectomy 7-22-2003

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        • #5
          Re: parking

          Doug - You are 100% correct it is easy. Get a form bring it to your doctor and WALA! parking permit for those days you need it!

          I have one... it took me a few years to admit I needed it. I do not use it all the time but when I need it it is there! I look at it this way...do I want to use all my energy walking into the mall, store, theater...or wherever or would I rather use that energy to ENJOY MYSELF!
          I pick ENJOY MYSELF!!

          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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          • #6
            Re: parking

            This posting moved me to inquire about getting a permit when I was at my doctor's office. He even had the form there, signed it for me, and I have already sent it in. Much like Lisa, I don't need it all the time, and won't use it unless the situation clearly calls for it, but its nice to have in just in case.

            I took a class with my son this summer, and had to park in a parking lot at the bottom of a hill, and then push my 30 lb. son in is stroller up the hill. By the time I arrived, I was half dead (and did I mention that there were handicapped spots right where I needed to go!)

            Oh well, next year!
            Daughter of Father with HCM
            Diagnosed with HCM 1999.
            Full term pregnancy - Son born 11/01
            ICD implanted 2/03; generator replaced 2/2005 and 2/2012
            Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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