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Art Geddes Find out more about Art Geddes
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  • #16
    Re: endocarditis

    Oh well - It was worth a try!
    I hope he makes it home for CHristmas - Art - please give me a call next week I would like to do something but need some information.

    Thanks!
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #17
      Re: endocarditis

      Hello all,
      Just an update, Jeremy still in hospital, evidently Lifecor vest is not going to work at this time, seems like age is major issue. Still has lesion on tricuspid valve, and the ep's evidently want that clearedbefore they do anything. 5 1/2 months is gertting old. Thanks for listening.
      Art

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      • #18
        Re: endocarditis

        Thanks for the update. I'm still saying a prayer for you guys.

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

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        • #19
          Re: endocarditis

          Art, thanks for the update. I was thinking about you all yesterday. We're praying for all of you. I hope your son's able to keep his spirits up, what a challenge! Linda

          Comment


          • #20
            Re: endocarditis

            Hello all,

            Just an update, Jeremy is still in St Francis, the PC here really balked at the vest on a 13 year old, so Jeremy is having an icd with epicardial leads placed on the outside of the heart. Evidently there will be 2 patches, atrial and ventricular, so they may have to do open heart through the sternum. He will be returning to PICU for a couple of days. I will let everyone know how things are going later.
            Thanks,
            Art

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            • #21
              Re: endocarditis

              Art, Best wishes, our prayers are with you. Linda

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              • #22
                Re: endocarditis

                Art

                Know our prayers are with you too and if you need us we are here for you

                Shirley
                Diagnosed 2003
                Myectomy 2-23-2004
                Husband: Ken
                Son: John diagnosed 2004
                Daughter: Janet (free of HCM)

                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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                Today's Birthdays

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