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If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
Oh well - It was worth a try!
I hope he makes it home for CHristmas - Art - please give me a call next week I would like to do something but need some information.
Thanks!
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Hello all,
Just an update, Jeremy still in hospital, evidently Lifecor vest is not going to work at this time, seems like age is major issue. Still has lesion on tricuspid valve, and the ep's evidently want that clearedbefore they do anything. 5 1/2 months is gertting old. Thanks for listening.
Art
Art, thanks for the update. I was thinking about you all yesterday. We're praying for all of you. I hope your son's able to keep his spirits up, what a challenge! Linda
Just an update, Jeremy is still in St Francis, the PC here really balked at the vest on a 13 year old, so Jeremy is having an icd with epicardial leads placed on the outside of the heart. Evidently there will be 2 patches, atrial and ventricular, so they may have to do open heart through the sternum. He will be returning to PICU for a couple of days. I will let everyone know how things are going later.
Thanks,
Art
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