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Radio Interview to promote HCM information & AED awarene

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SharonBates Find out more about SharonBates
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  • Radio Interview to promote HCM information & AED awarene

    On Aug. 14th in the afternoon, Allen Bates, Anthony's Dad and I were interviewed on ESPN radio in Phoenix. If you would like to listen to our interview click on this link and then click on the ESPN button for the radio broadcast. The audio stream of this interview will only be on that web-site for one week, until next Thursday's program replaces the link. We were on the first 10 minutes of the one hour program. We talked about the importance of AED's in schools and fitness centers, and promoting heart screenings for our young athletes.

    http://www.befitstayfit.com/

    Our HCM awareness video will be ready in early September. We have sports figures, coaches, and even Dr. Barry Maron helps us explain HCM to our viewers. Those of you that attended the Annual Meeting may have seen our video crew interview Lisa Salberg, she did great!
    2
    If you would like a copy, please send me a PM so I can get you on the mailing list. Of course, our star President, Lisa, is already on the mailing list!

    Our next heart screening event will be at Kansas State University, Manhattan, KS, Sunday, October 26th. Plans are underway for our next heart screening and fund raising events in Phoenix, and Tucson, AZ, as well as Dallas, and Jacksonville, FL.

    "If you build it they will come!" It's all about awareness and education!

    Best Regards,
    Sharon Bates
    Anthony's Mom

    www.AnthonyBates.org

  • #2
    Re: Radio Interview to promote HCM information & AED awa

    Thanks for sharing.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Re: Radio Interview to promote HCM information & AED awa

      Sharon, You and Allen have done a tremendous job of promoting awareness. I look forward to seeing the video. Thank you, Linda

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      • #4
        Re: Radio Interview to promote HCM information & AED awa

        Excellent work.

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        • #5
          Re: Radio Interview to promote HCM information & AED awa

          Sharon,

          Your radio interview was great. I listened to it this morning. Keep up the good work. I look forward to seeing the video when it is done.

          Kelly
          Life is 10% what happens to you and 90% what you do with what happens to you.

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          • #6
            Re: Radio Interview to promote HCM information & AED awa

            This is my first post so bear with me. I am 16 years old and a Junior in high school. My family was diagnosed in the early 1990's and have had genetic testing with Dr. Christine Seidman at Brigham and Women's Hospital. I am positive for the gene that may someday develop into HCM. My mother and her twin sister went to the HCM meeting last June in New Jersey and they met you. As a result of this disease and the fact that knowledge is power, I have chosen "Sudden Death in Athletes" as my senior project. I am in the process of raising the funds to put AED's in the 6 high schools in the county in which I live. I have put one unit in place at my high school and have the funds for one more. So far, I am writing letters and visiting potential contributors to raise the necessary monies that I need. Any suggestions? I would also like a copy of the interview - just let me know what I need to do.

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            • #7
              Re: Radio Interview to promote HCM information & AED awa

              Wow, Cynthia! Way to go. I'm sure that Lisa or others will get back with you soon, but with Christmas right around the corner, I'm not sure just when that will be. Why don't you post your or your mother's email address too so that they might be able to write you directly?

              Reenie
              Reenie

              ****************
              Husband has HCM.
              3 kids - ages 23, 21, & 19. All presently clear of HCM.

              Comment


              • #8
                Re: Radio Interview to promote HCM information & AED awa

                Hi Cynthia,
                What a great project and personal story you have to share with the world! I remember meeting your Mom and sister. We had a great time together getting to know each other. Give them my best!

                I can send you an audio and transcript copy of the interview...it might be a few days after Christmas before I can get it in the mail to you. I have to figure out some of the technical issues with making an audio copy of the interview. Plus, I have lots of AED contacts that could serve you well. If you haven't heard my new promotional and awareness video, "What is HCM?" is ready! I have been sending copies of this all over the country, Canada and the UK! You are more than welcome to use in your project. I'll send you a copy of that too.

                Before I overload you with information, maybe we should talk and you can give my some idea on the direction you would like to go with your project. Call me anytime (AZ is on Mountain Standard Time zone right now) then we can put our heads together. You can send me your address through a Private Message (PM) or you can give it to me when we talk!

                Thank you for stepping forward and making a difference in your world! Each person has a role to play with the knowledge they have gained. No role is too small to save a life.

                Blessings to you and yours during this holiday season!
                Sharon
                (602) 483-5606
                [email protected]
                www.AnthonyBates.org

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                • #9
                  Re: Radio Interview to promote HCM information & AED awa

                  Cynthia,
                  Thanks for your posts. I have meet your family. I have learned how wonderful Cleo is!

                  Best wishes to the entire family!!
                  Lisa
                  Knowledge is power ... Stay informed!
                  YOU can make a difference - all you have to do is try!

                  Dx age 12 current age 46 and counting!
                  lost: 5 family members to HCM (SCD, Stroke, CHF)
                  Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                  Therapy - ICD (implanted 97, 01, 04 and 11, medication
                  Currently not obstructed
                  Complications - unnecessary pacemaker and stroke (unrelated to each other)

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