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Mayo Clinic in Rochester

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  • Mayo Clinic in Rochester

    [Mayo Clinic in Rochester]

    Author: Renee (---.dsl.lax.megapath.net)

    Date: 04-17-02 20:20

    My daughter was recently diagnosed and she is 18. I have done some research and the Mayo Clinic has a clinic on HCM. I would appreciate any input on this or any other viable center. I watched my mom die from HCM and my sister progress rapidly. I want the best care I can get for my daughter.

    Thanks for your help,

    Renee

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    [Re: Mayo Clinic in Rochester]

    Author: Sarah Beckley (---.dsl.mindspring.com)

    Date: 04-17-02 21:32

    Dear Renee

    I'm very sorry for your loss. There is a lot more treatment for HCM now than there used to be. What is being done for your sister?

    I've been to the Mayo and they are wonderful, in my opinion the best, and so caring and warm and professional and fantastic and I can't say enough good things about them. Have you checked out their web site? mayo.edu.

    Also, the HCMA annual meeting is going to have a teen session this year --the details are on a post on this board.

    There are other places, too, and you can call the HCMA at 973-983-7429 to get the names and numbers, but I love th eMayo.

    Sarah

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    [Re: Mayo Clinic in Rochester]

    Author: mary (208.132.95.---)

    Date: 04-20-02 11:02

    My son was diagnosed last summer with hcm and he was 14. We went to Mayo Clinic in Rochester. They are excellent! They did many tests to determine the risk for sudden death (tests my other doctor said could not complete due to his condition..stress test) THey spent so much time with us, we never felt rushed and all our questions were answered. We even got to see the Chairman of the Department of Cardiology and Electrophysiology....so we felt we got the best of the best.

    I would recommend going to Mayo to anyone. Just be warned that they usually make a 2 day visit and you end up staying for about 5 days. Not alot to do while you wait but the Mall of America is about one hour away.

    Mary

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    [Re: Mayo Clinic in Rochester]

    Author: NURSE NANCY (207.109.18.---)

    Date: 04-24-02 15:30

    YOU ARE SO LUCKY ............ YOU ARE IN THE BEST HANDS AT THE MAYO CLINIC. WE LIVE IS ST. PAUL AND WE WERE REFERRED TO THEM FOR MY SONS CARE AND A SURGICAL CONSULT. I AM A NURSE AT A CARDIOLOGY CLINIC AND I DID THE RESEARCH FOR US AND MY FELLOW DOC'S THAT I WORK WITH WERE MORE THAN HELPFUL AND SUPPORTIVE. TRUST ME YOU ARE ON THE RIGHT TRACK AND IN GOOD HANDS.

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    [Re: Mayo Clinic in Rochester]

    Author: Irwin Spivak (---.dialup.mindspring.com)

    Date: 04-28-02 12:18

    Dear Nurse Nancy: As a 75 year old relatively healthy man, I've lived with extreme chest pains for over 40 years and have determined that whatever years I've got left should be with a minimum of pain. I am seriously considering contacting the Mayo Clinic. Does our normal health insurance cover this and do I require a letter or recommendation from my heart doctor? You indicated that a five day or so stay is usual. Does this mean a motel or a hospital bed? Sorry for all the queries but I've been thinking about this for quite awhile. Medications ave been a complete failure and the pains have increased in intensity as I've aged. Normal physical activities that require and lifting or distance walking or sports are out of the question, particularly after ingesting food. Your insight into my questions would be greatly appreciated. Irwin Spivak. [email protected] or (561) 533-7429. Thanks in advance.

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    [Re: Mayo Clinic in Rochester]

    Author: Sarah Beckley (---.dsl.mindspring.com)

    Date: 04-28-02 22:52

    Dear Irwin,

    Please visit www.mayo.edu for all the information and phone numbers for the Mayo --click on the link for the Mayo Clinic Rochester on the left side of the home page as Rochester is their main campus although I hear the Scottsdale campus is nice.

    They can tell you if they take your insurance (they do accept most major companies but I heard they don't take Medicare --but don't quote me on that).

    When you go to the Mayo for the first time, it is as an outpatient and my experience was only 3 days. There are links from their web site to a listing of all the hotels in town (a lot and they range from super cheap to luxury). You will spend the first day getting an ECG, a chest X-ray, maybe an ECHO and so on. Day 2 is seeing various doctors and deciding if any other tests should be run. Day 3 would be doing the follow up tests or getting any treatment that they can start right away.

    Your doctor may be able to refer you to someone there, or you can try cold calling, or you could write a letter to the head of cardiology, who will be listed on the web site, too. I wrote a letter as my case was complicated and the head of the HCM Clinic called me right away and invited me up.

    Let us know how it goes,

    Sarah

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    [Re: Mayo Clinic in Rochester]

    Author: Midge (---.obmo.socket.net)

    Date: 04-29-02 13:31

    Renee, As a 25 year patient of Mayo Clinic I can endorse the health care there. They have kept me ticking for all this time. The Cardiomyopathy Dr.'s are great as are all of the rest of the Cardiologists. I think I have seen many of them, I do have 2 who follow me every 3 months. Dr. Kyle Klarich, and Dr. Peter Spittell. Good luck to you.
    NOTE: This is a post from the previous forum message board.

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