If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

follow-up to my update


About the Author


mongo_jones Find out more about mongo_jones
  • Filter
  • Time
  • Show
Clear All
new posts

  • follow-up to my update


    i went for my stress echo-cardiogram with dr. shah at hoag hospital in newport beach yesterday. i am glad to report that the results were all good with my heart rate and blood pressure changing appropriately during different levels of the supine bike (more exercise than i'd done in ages!) and no obstruction presenting itself upon exertion. i also did the amyl nitrite (nitrate?) inhalation thing--not the most fun thing in the world. my first breath was real deep and i took the second one without fully exhaling--man! my head felt like i'd put a cup full of wasabi in my mouth! anyway, my response to that was fine too. i've now been cleared to do reasonable levels of cardiovascular exercise.

    i want to second (third? fourth? twenty-fifth?) all those who've been recommending seeing specialists. my experience at hoag with dr. shah has been so excellent (the echo quality was amazing, the staff was knowledgeable and friendly, dr. shah was present for the entire echo and explained everything as it went on and afterwards again) i am going to try my best to see him once a year even though i am moving to colorado this month--hopefully the new insurance will cooperate.

    the other good news i've gotten is about salt. my regular cardiologist had told me to eat a low salt diet. dr. shah's put an end to that--noting, as some of you have here, that for the hcm heart low salt is worse than normal or even slightly high salt.

    anyway, don't want to go on too long. i just want to say that since i have seen dr. shah i am for the first time truly comfortable in my mind about my condition. i feel like i know enough, have a clear sense of what's happening in there, and that the future, while not guaranteed, is an open book. i want to thank cynaburst, who first recommended i see dr. shah, and lisa, who all but insisted. i also want to recommend him to all west coast hcm'ers who do not have access to specialists close to them.

    hope everyone has had a good day and that this will continue into the weekend.


  • #2
    Re: follow-up to my update

    That's great news, Mongo! I just made an appointment with Dr. Shah for my annual check-up (September). I will second everything you said about him and the team he has assembled. They are the best!



    • #3
      Re: follow-up to my update

      Was I that ... umm... forceful in my suggestion to see Dr. Shah?
      Well, now you see why

      I am happy things are going well. When you have a chance I would like to talk to you re some matters related to your occupation. Tuesdays are best for me in the office for the next two weeks, if you have a chance give me a call.

      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)