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Our Experience at Mayo Clinic


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kthanki Find out more about kthanki
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  • Our Experience at Mayo Clinic

    The difference a specialty HCM clinic can make is amazing. I have non-obstructive HCM and have been to the Dr.s in PA, IL, and NV in last 8 years.
    But I just got back from Mayo Clinic in Rochester yesterday, and I have to say it is the seven star of health care. All the appointments were on time or before time unlike my prior experiences with Dr.s
    The attention to the details with all the tests is enormous. All my echos in the past have taken 20-30minutes. At Mayo, they took 2 hours for the echo. Also, the measurement techniques/parameters and units used by Mayo are different compared to regular cardiologist. e.g. my prior echos had only one measurement of left atrium ranging from 4.1cm to 4.4cm. At Mayo, the do not measure linear dimension, instead they measure the volume of left atrium.
    The Dr. who reviews the echo, luckily in my case my assigned Dr. was present during the echo as well. This has never happened to me in 20 years of my HCM experience.
    The assigned Dr. spent hour and a half with us and explained the condition and risk factors. Very methodical and orgaznized thinking as well from the Dr.
    He recommended additional tests which were performed the same day and he met us again after the tests and sat down to go through the results.
    At any time the Dr. never lets you feel he is in a hurry or wants to be done with you.
    The understanding of the physiology and anatomy of the Dr. is phenomenal. None of my past Dr.s' have been able to answer all my questions. This is the first time, a Dr. had answers for all my scientific questions.
    In summary, one hopes you never need high end health care, but if you do Mayo is the place to be.
    Good luck every body and have a happy heart...
    Ketan Thanki

  • #2
    Re: Our Experience at Mayo Clinic

    Dear Ketan,

    I know that there are other centers that are also wonderful and many here have great things to say about them. But I've been to the Mayo, and like you, think there is none better. Staying in their hospital was almost a vacation. Doctors came by several times a day. There was none of that "try and catch them during rounds or forget about it."

    They LET YOU TAKE A SHOWER!!! Even when you are on telemetry! It was incredible, humanzing, and just plain nice.

    I never worried that my orders or medications would be wrong. I never worried that they would send me down to the cath lab and do the wrong procedure. And my opinion always mattered.

    Did you notice that your ECG had about 12 or 14 leads instead of 5 or 8?

    That is how it is supposed to be.



    • #3
      Re: Our Experience at Mayo Clinic

      I am thrilled you had a good visit and that you have had the chance to have your questions answered!

      I can not say strongly enough how important it is to have a specialist involved in your care... I hope others learn from your message!

      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #4
        Re: Our Experience at Mayo Clinic

        I say AMEN to your note re: Mayo. I have been going ther for 30years for my HCM and they keep me ticking. They are great. Glad you had a good experience.

        Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
        ICD&Pacemaker 1996
        Heart transplant March 19, 2004 @ Mayo Rochester
        Mom of Kaye.


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