If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.



About the Author


Member of 1000 Post Club!
Find out more about cynthiaG
  • Filter
  • Time
  • Show
Clear All
new posts

  • Sob

    can you have SOB with HCM and not have CHF?
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson

  • #2
    Re: Sob

    Hi Cynthia,

    Many of us do have SOB with our HCM and do not have CHF. It is a common complaint. Here is what is written in the book co-authored by Lisa Salberg and Dr. Barry Maron ("Hypertrophic Cardiomyopathy: For Patients, Their Families, and Interested Physicians") re: SOB - "...Most individuals experience only mild limitation of exercise, but occasionally this becomes severe and patients are unable to walk even one city block or a flight of stairs without stopping due to shortness of breath; a small minority may have shortness of breath at rest."

    If I recall correctly you have a history of CHF so I would check in with the doctor if your symptoms worsen and to confirm that the SOB is not due to fluid build up. However, if it's reassuring to have others 'in the same boat' then (unfortunately) know you're in good company.

    Do you by chance have the book that Lisa and Dr. Maron wrote? If not, you may want to get a hold of it as it is loaded with lots of terrific information in patient-ease language.

    All the best,
    Lynn Stewart
    HOCM 4/2002
    Cleveland Myectomy Crew 8/2002


    • #3
      Re: Sob

      Most people with HCM have SOB without being in CHF.
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      Today's Birthdays