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cynthiaG Find out more about cynthiaG
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  • Sob

    can you have SOB with HCM and not have CHF?
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson

  • #2
    Re: Sob

    Hi Cynthia,

    Many of us do have SOB with our HCM and do not have CHF. It is a common complaint. Here is what is written in the book co-authored by Lisa Salberg and Dr. Barry Maron ("Hypertrophic Cardiomyopathy: For Patients, Their Families, and Interested Physicians") re: SOB - "...Most individuals experience only mild limitation of exercise, but occasionally this becomes severe and patients are unable to walk even one city block or a flight of stairs without stopping due to shortness of breath; a small minority may have shortness of breath at rest."

    If I recall correctly you have a history of CHF so I would check in with the doctor if your symptoms worsen and to confirm that the SOB is not due to fluid build up. However, if it's reassuring to have others 'in the same boat' then (unfortunately) know you're in good company.

    Do you by chance have the book that Lisa and Dr. Maron wrote? If not, you may want to get a hold of it as it is loaded with lots of terrific information in patient-ease language.

    All the best,
    Lynn
    Lynn Stewart
    HOCM 4/2002
    Cleveland Myectomy Crew 8/2002

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    • #3
      Re: Sob

      Most people with HCM have SOB without being in CHF.
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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