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  • teen support

    [teen support]

    Author: mary (---.ckhnet.com)

    Date: 04-13-02 09:47

    I have a teenage son who is 15 with hcm. I am wondering if there are any other teens out there who would like to correspond on a teen site? As a parent it is diffecult to know what they are feeling. It is tough enough to be a teen much less have a medical condition that limits you. Thanks.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: teen support]

    Author: Sarah Beckley (---.dsl.mindspring.com)

    Date: 04-13-02 17:32

    Dear Mary,

    THe HCMA has a network for its members and will hook your teen up with others. There will also be a special teen session at the annual meeting in NJ on May 31st and June 1st. You can all the office for details about both -973-983-7429.

    Sarah

    We could also add a Teen Only message board here, too, if there was enough interest.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: teen support]

    Author: Kasey Wookey (---.per.openaccess.com.au)

    Date: 04-15-02 23:43

    hi mary my name is kasey and im 17 and i also have HCM.

    my mum also feels th same as you as she doesnt understand or know what I am feeling or going through.

    and i would be happy to get in touch with your son.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: teen support]

    Author: mary (208.132.95.---)

    Date: 04-20-02 11:21

    Kasey,

    What is your email adress? I will pass it on to my son and he may or may not contact you. I really never know how he feels. sometimes, I think he doesn't even want to talk aobut it.

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    [Re: teen support]

    Author: Sarah Beckley (---.dsl.mindspring.com)

    Date: 04-21-02 12:53

    Dear Mary,

    If you click on Kasey's name that is underlined in blue on her posting, it will launch an e-mail to her.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: teen support]

    Author: Kasey Wookey (---.per.openaccess.com.au)

    Date: 04-22-02 11:40

    Mary,

    my email address is [email protected].

    its cool, its your sons call to email me. just tell him i know how he feels. im a teenager with the same problem.

    i looking forward to getting his email.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: teen support]

    Author: rhonda (---.proxy.aol.com)

    Date: 04-23-02 16:59

    hi,

    i have a son who turns 19 next week, he was diagnosed at age 15. at that time

    he was a very competitive baseball player and weight lifter. according to our athletic guidelines in alabama he was removed from sports immediately.

    this was not only a devestating period for him, but also us (his parents and family)

    it was a real struggle for him to maintain a relationship w/ people who had been his friends for life (they were just like him, real jocks,and were busy w/ practice, games, etc...) but time has helped. he has shared his condition w/ only close friends and just backs out during strenuous activity.

    luckily for us and him, he has become interested in fishing and hunting, again w/

    the strenuous parts done by his friends and dad.

    he is now a freshman in college, living in his own home w/ friends. I am no longer around to monitor his lifestyle, rest, and meds, but he knows the risks, does his best to take care of himself but continues to live life his way.

    his e-mail address is [email protected].

    feel free to write him, but as i said he continues to be very private and withdrawn when it comes to having hcm.

    best of luck to you

    rhonda
    NOTE: This is a post from the previous forum message board.

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