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  • Introduction

    [Introduction]

    Author: Rick (---.proxy.aol.com)

    Date: 04-13-02 00:47

    Hi, I'm a 51 year old male that has shown symptoms for approx. 22 years, I was however not diagnosed with hypertrophic cardio myopathy until 1994. During the undiagnosed period it was a very difficult time for me as I was in a VERY strenuous job (high country logging). I would go to my doctor in the early period (being in great shape at the time) but at the same time knowing that I was slowly running out of gas and tell him that something was wrong and I didn't have the energy that I thought I should have. The out of shape doctors would look me over and tell me that they should be in such good health and send me on the way. This went on for the next few years all the while I was getting worse (ALWAYS LISTEN TO WHAT YOUR BODY TELLS YOU) after a few more visits and many ekg's, and a angiagram I had a doctor tell me that "maybe you should see a psychiatrist as you have nothing wrong".

    With that said I began to wonder myself so I struggled along and began to jog and bought myself a complete weight set, after all I MUST be out of shape! It was like pouring water in a bottomless glass, this went on until 1994 and I happened to have a cold and paid a visit to my new family doctor. He noticed a murmur and sent me to a different cardiologist and he ordered an echocardiogram.... Finally an answer and I don't need a shrink?

    I'm retired now with a pacemaker installed in 1995 I think it helped some but nothing great. I take 200mg of beta blockers twice a day and I am watching the alcohol treatment results before I make any decisions. I live in the state of Washington and have been to the University of Washington and spoke to them of my options, as of now I risk nothing by waiting . Rick

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    [Re: Introduction]

    Author: Sarah Beckley (---.dsl.mindspring.com)

    Date: 04-13-02 03:48

    Dear Rick,

    Welcome to the board.

    Please call the HCMA office at 973-983-7429 to see what HCM specialists in are in your area.

    They have fancy new pacemakers now and your beta-blocker load is huge. There are other drugs you can try that may work better for you, or some combination. Only an HCM specialist will be able to evaluate your options effectively.

    all the best,

    Sarah

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    [Re: Introduction]

    Author: Lisa (---.dyn.optonline.net)

    Date: 04-13-02 06:52

    Rick,

    Your "story" is very common and I feel as if I have heard it a million times. Funny thing is my own father had been told for years that everything was in his head! My dad was 'happy' to find out it was in his heart not his head so that he could then do something about it.

    I suggest you move slowly prior to going ahead with any invasive procedures. PLEASE remember with ablation, myectomy, pacers and medications, these are treatments to relieve symptoms, we are all still left with HCM in the end.

    Evaluate symptoms prior to moving forward on any treatment. Call the office to get signed up on the mailing list and start receiving our newsletters!

    My best wishes,

    Lisa Salberg

    President

    HCMA

    973-983-7429

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Introduction]

    Author: Rick (---.proxy.aol.com)

    Date: 04-13-02 16:17

    Thank you Sara and Lisa, on one hand its helps me to know that I am not alone in this struggle and on the other hand it saddens me greatly to see how many others suffer thru this along with their familys. I do plan on calling the office and checking for specialists in my area. I also plan on moving very slow if and when I choose any invasive procedures, I am however approching the need to do something as it is getting slowly more difficult to make it thru the day without 2-3 naps. Mowing my small lawn with a power self propelled mower is becoming a big deal, I have come to accept my condition and have adjusted my life to it. Learning where your limits are is very important and I approch them (just short) on a regular basis with no ill effects. Rick
    NOTE: This is a post from the previous forum message board.

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