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If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
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Blood Clots, and broken veins
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About the Author
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I am 43,have a beautiful daughter, and am loving my new life !
Find out more about murrayfan33
I had an echo doneJune 20, and was told I have clots on the leads from my I.C.D. I also have a vein that has come to the surface of the skin and burst, looks like a bruise. Any ideas?
Hello, I`m Craig, I have H.O.C.M. and I`m making the most of my life with my daughter and my wife!!!
Craig, I really enjoyed visiting with you and Kim in NJ. As for the echo, who told you about the clots on leads? If it was the doctor, call back and ask what the implications are and what he or she plans to do about it. Tell them also about the broken blood vessel. Can you remember any injury, even slight? If it was not the doctor who told you about the clots, call the doctor and explain what you were told, then ask what it all means and what is planned from there. Hope you get a reasonable explanation soon. Keep us posted. Linda
Hi Linda, we enjoyed seeing you too! Dr. Sharrid did the echo and told me about the clots. I will find out today, 6-23 what to do. I will keep you posted, take care, Craig
Hello, I`m Craig, I have H.O.C.M. and I`m making the most of my life with my daughter and my wife!!!
Craig,
I guess the test went OK last week, which I am very glad to hear!
I would guess you will be looking at blood thinners to help avoid this from happening again.
Be well and I know you at in my thoughts!
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Hello all, I have been put on coumadin, 7.5mg. and Dr. Sherrad also found a hole in the top of my heart, between the right and left sides. I`ll keep you posted, bye
Hello, I`m Craig, I have H.O.C.M. and I`m making the most of my life with my daughter and my wife!!!
Many people have holes...if he does not feel the need to repair it I would not worry about it too much.
The blood thinners are going to take some getting use to but you'll be fine
Take care! (oh thats an order,,not a request )
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Ya know those reading this may think I am being a brat with my last post to Craig...but he knows What I mean
Later!
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Just an FYI I thought I would share. As some of you know, my husband, Chuck, died in April due to a blood clot to the lung after his myectomy. I talked with his cardiologist yesterday and while they are not sure where the clot came from, they did find clots on his defib leads. He said it's quite unusual to have clots on the leads--so just thought I'd pass that along so if you have this, you can pursue measures to keep from forming large, life-threatening clots.
Roxann
Roxann,
You bring up a good point and I will follow it up with this:
IF you have any symptoms such as vision problems, numbness, confusion, severe headache CALL THE DOCTOR.
I had my stroke in 1990 and honestly I had NO CLUE it was a stroke (OK I was 21 yrs old). My symptoms started as numbness in my left forearm and hand...then left face... then a headache (ok more like an ice-pick being stabbed into my head over and over for hours and hours). These symptoms came on slowly - from 1st symptom to the getting to the hospital was over 3 weeks!
Mine was an embolic stroke from the endocarditis.... so I actually had several mini-strokes or TIA (transient ischemic attacks) in that 3 weeks. I am so luck NOT to be more damaged then I am - loss of vision in my upper left eye, seizures and some left sided weakness... but I do think I am lucky.
Watch for signs and act on them.
Best to all,
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
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