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Meeting in 2005!

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Lisa Salberg Find out more about Lisa Salberg
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  • Meeting in 2005!

    Yes I know this posting seems a little early but I need to get an idea from you all as to who will be interested in this event. Let me explain.
    The 3rd International Summit on HCM will be held in Minneapolis MN October 7,8,9 2005. I have spoken to the organizers who are happy to add October 5, 2005 as a "patients day". Here is what we are working on.
    The day before the Summit kicks off for the doctors we will arrange a patients only meeting with Key speakers from the conference. In addition I think the organizers will offer special pricing to patients for the Summit (Oct 7-9th).
    If people are interested in this type of a meeting I will need to organize it now and I will need to have an idea of how many would be interested in attending.
    So here is the question ...Would you be interested in attending a meeting like this?
    0
    Yes
    0%
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    No
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    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: Meeting in 2005!

    Lisa,

    You should point out how this is fundamentially different from the annual meeting in that the focus is on doctors talking to other doctors and reporting their findings and sharing ideas and treatment protocols, etc etc.

    But I'll be there. I was at the last one and while a good chunk of it went over my head, it was really interesting.

    later,

    S

    Comment


    • #3
      Re: Meeting in 2005!

      Sarah - That is not the point of this meeting - October 5th will be very much like the annual NJ meeting - it will be the Patients Day... Oct. 6-8 will be a "medical conference".
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: Meeting in 2005!

        L,

        I'm aware of the difference, but I was obliquely trying to say that since you don't explain what the Summit _is_ in this post, anyone who isn't familiar with it may not understand what you are trying to say in terms of a "patient" day versus a "conference" day. You see what I mean?

        S

        [/i]

        Comment


        • #5
          Re: Meeting in 2005!

          Seems like this would be a logical venue for the '05 HCMA annual meeting. Why have two separate gatherings in the same year?

          Comment


          • #6
            Re: Meeting in 2005!

            I am not sure what the HCMA annual meeting plans are in NJ for 2005. I have planned 2004 it will be June 4, 5 and 6th at the Westin again...with some new twists...more on that later!
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Re: Meeting in 2005!

              I'd definitely be interested. That's more in my "neck of the woods" and sounds really interesting.

              Dee
              Dee, Mom to Dylan
              (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

              Comment


              • #8
                Re: Meeting in 2005!

                I would be very interested in both meetings.

                Pat

                Comment


                • #9
                  Re: Meeting in 2005!

                  I am there !
                  Ketan Thanki

                  Comment


                  • #10
                    Re: Meeting in 2005!

                    I would be most interested in attempting to attend the patient day as proposed in 2005. I think the more proactive and knowledgeable we can be, the better it is for us. Since there is a medical conference following the proposed meeting, we will have many top specialists available as well as we can stay informed concerning the most recent research involving HCM.


                    Jill

                    Comment


                    • #11
                      Re: Meeting in 2005!

                      Hi Lisa,
                      Sorry I haven't been too active lately but I'm trying to get all my ducks in a row before my Myectomy on June 26th at CCF.
                      What a tremendous job you and your staff did in New Jersey. I'm sorry I could not stay for dinner but the meeting was tremendous.
                      I would be very interested in attending both the meeting and conference in 2005. Please keep me posted.
                      I'll try to e-mail you with how my progress in Cleveland is going and wish anyone interested to send good positive thoughts to me and my doctors on the 26th.......
                      Thanks for all your hard work. It really matters!
                      Take Care;
                      Tony

                      Comment


                      • #12
                        Re: Meeting in 2005!

                        Tony, best wishes. Prayers are coming your way. Linda

                        Comment


                        • #13
                          Re: Meeting in 2005!

                          I must say that this sounds like a great place to host a "patients day" and even possibly hold the annual HCMA meeting at the same time. I would think that there would be value to all parties involved by doing this.

                          I would be very interested in making the trip north for a Patient's Day. Please keep us posted!
                          Tom Mc.
                          Apical HCM

                          Comment


                          • #14
                            Re: Meeting in 2005!

                            Count me in. I will hopefully moving easier and feeling much better by than.

                            Tony, your in my prayers. You will be in the hands of a wonderful team at Cleveland. Find Peace in this knowledge as well as the prayers going up for you and your team.

                            Diana

                            Comment

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