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UPDATE: Amyloidosis and HCM


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  • UPDATE: Amyloidosis and HCM

    Thanks, Ellen for your help. I want to let those of you know that I would appreciate any info. you have on this topic; I just found out about an article at the medical library on the topic of both amyloidosis and HCM (my husband, a research doctor, was able to locate this article) so if anyone is also interested in reading about amyloidosis or needs info. on it, I will gladly provide the info. and may also give feedback anyway on what I find out.
    HCM & diastolic/systolic HF (burn-out HCM) DX in 2010
    Brother 34, sister 45, & mother 73 passed away from HCM burn-out/CHF/DCM
    Sister @ 41 got heart transplant on Valentine's day 2002
    Oldest sister, diagnosed with HCM in 2010
    only niece cleared by genetic testing; son not genetically tested yet
    Suspected HCM in maternal grandmother (d. 39), 2nd cousin (d. 33),
    maternal grand aunt (d. 51), & maternal great grandmother (d. 50s); with hrt. conditions/hrt. surgery/kidney d.