If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

treatment for arrythimias/tachycardia

Collapse

About the Author

Collapse

cynthiaG Find out more about cynthiaG
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • treatment for arrythimias/tachycardia

    has anyone tried beta blockers that didn't work for this but found a med that did??
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson

  • #2
    Re: treatment for arrythimias/tachycardia

    Cynthia , I will share my history with you on my rythum problems maybe it applys maybe not. I started with a-fib , doc said no big deal take coumidin to keep from having stroke. a-fib then progressed into a-flutter which is just faster and after 6 weeks of this they cardio verted me back in rythum. still kept going in and out of a-fib for about 18 months (was taking 100mg atenolol and 240 mg verapimil)they changed up meds to 100 mg toprol and took me off atenolol and verapimil and tried an ace inhibitor this ended up after 2 months trying to get it right in hospital in v-tach and fib, spent 10 days getting back to good rythum they put me on beta-pace (soltalol) and mexiletene, and have me 100% v paced now. now i am still very sob but not in v-tach any more ,still have pvc but not any more than normal .so i guess to answer your question the beta pace is technically a beta blocker, even though its more of an antiarytmia drug. hope this make a little bit of sense to ya cause i know feeling those rythum in your chest arent fun and can really scare you ,good luck Rich
    Allways remember you cannot control the wind!!
    However you can adjust your sails!!

    Comment


    • #3
      Re: treatment for arrythimias/tachycardia

      Hi Cynthia, My problem is mainly rythym (electrical) as opposed to other HCM related problms. I had taken Inderal for about 30 years and did have sporadic rythym problems so my doc switched me to Atenolol last year and I felt great, not one incident that I could detect, the best I have felt my entire adult life.
      However he was not happy that it slowed my rate down to under 50 bpm, so I just switched to Monocor (Canadian Name) a few weeks ago and I am wearing a holter monitor as I write this to see the effect.
      Shortly after starting Monocor my rythym problems started coming back and I had a bad two hours last night after eating dinner, glad I was wearing the monitor for my doc to see it. I feel better today but I am still having a few incidents.
      My rate is still as slow as it was with Atenolol so it didn't work for that, I suppose I'll have to try something else now.
      Maybe I can convince him to put me back on the Atenolol where I really did feel great dispite the slow rythym.
      My answer to your question is yes I believe there are meds that work better than others for rythym problems, it's just a matter of finding the right combo and level.
      Well back to the drawing board.
      Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
      So if you are capable of thought then you are capable of great things
      Good luck and stay well.
      Glen

      Comment


      • #4
        Re: treatment for arrythimias/tachycardia

        Thanks so much for your input, guys! I went to my primary care doctor this morning as he is right in town as I had about 2 hrs. of tach at 4:00 this morning. Up until a few weeks ago, I never got these. I do go to Boston to the specialists and they have been great, but was a nervous wreck this morning. My doctor called into Boston while I was waiting in another room as he doesn't have the copies of tests performed in Boston yet. They are sending me an Event monitor which will arrive to my home tomorrow. I wish I knew why I was getting these scary irregular arrythmias. There was a mention of a possibility (if meds don't help it), of having a cauterization of one of the SV(?) nodes? best of luck to you....again, thanks!
        \"It is not length of life, but depth of life.\"

        Ralph Waldo Emerson

        Comment


        • #5
          Re: treatment for arrythimias/tachycardia

          Cynthia, good luck figuring this all out. I'm glad your docs are working quickly to help you. Talk to your doctor about which symptoms you should consider to be an emergency and what you should do about it. None of us want to be in an emergency room needlessly, but there are times when it becomes necessary. Extreme, unresolving shortness of breath, unresolving dizziness, fainting, chest pain that doesn't resolve - these could signal a need for emergency care. You know what your usual symptoms are and you know how bad you feel with symptoms. Don't compromise your safety, esp if you are alone with no one else to call for help for you if need be. I don't mean to frighten you, but rather to help you think of a backup plan. Keep us posted, Linda

          Comment


          • #6
            Re: treatment for arrythimias/tachycardia

            Cynthia: Like Glen, I was on Inderal for 30 years and then a few months ago my doctor switched me to Atenalol. However, unlike Glen, the atenalol didn't work worth a darn and I began experiencing tachycardia episodes the likes of which I hadn't had since the early 1980s. The doc switched me back to Inderal and I'm fine again, although it took several weeks to get back up to speed. I guess the point is, everybody's different and different people respond differently to different meds.

            Comment


            • #7
              Re: treatment for arrythimias/tachycardia

              Hi Cynthia,

              I take sotalol for my v-tach problems. So far (since September last year) this drug has been working for me. Good luck getting to the bottom of your troubles. I hope your doctors are able to find something that works for you

              Elizabeth

              Comment


              • #8
                Re: treatment for arrythimias/tachycardia

                I too was on inderal for 40 years and then had v tach problems - sustained. Tried sotalol, flecanide, tikosyn and am now on amiodarone which has worked well for me but I worry about long term side effects. With me as many, its been trial and error. Some , the side effects were worse than the disease(sob,fatigue,insomnia, shaking etc. and none but amio controlled the v tach well enough for me to function. I had very little side effects from inderal, but when switched off and to other drugs, it was a different story...
                Chuck B

                An inch is a cinch, a yard is hard

                Comment


                • #9
                  Re: treatment for arrythimias/tachycardia

                  Dear Cynthia,

                  While we all have HCM, we all have variations and there is no way to know which anti-arrhythmic drug is going to work for you until you try it. And you change, your heart changes, and needs new things over time (sometimes).

                  We all go through rough patches and then you re-adjust the meds and figure out a trigger if there is/was one and keep going. It is scary and troublesome, but they work out. You are seeing specialists who understand the process and will make sure you are taken care of.

                  keep us posted,

                  S

                  Comment


                  • #10
                    Re: treatment for arrythimias/tachycardia

                    Sarah bring up a good point. We sometimes have changes that do pass, finding out what the trigers for these events are ..well that is the trick. Sometimes it is simple -hydration, large meals, stress, fatigue these simple items can cause a wide variety of symptoms. Look at the easy stuff first ... changing meds is not something we want to do too much, it takes our body a while to adjust to any change in meds.
                    Be a detective and see if you can pin point changes in your life that connect with when you are having symptoms...there may be a great deal to learn.

                    Be well,
                    Lisa
                    Knowledge is power ... Stay informed!
                    YOU can make a difference - all you have to do is try!

                    Dx age 12 current age 46 and counting!
                    lost: 5 family members to HCM (SCD, Stroke, CHF)
                    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                    Therapy - ICD (implanted 97, 01, 04 and 11, medication
                    Currently not obstructed
                    Complications - unnecessary pacemaker and stroke (unrelated to each other)

                    Comment


                    • #11
                      Re: treatment for arrythimias/tachycardia

                      Thanks everyone for your input....your comments and suggestions make a lot of sense. I've been wearing an event monitor since Fri. a.m....just had a few premature beats....just when I go to press the button, they're gone! Thankfully, no real long lasting tachs yet. Have to wear this for a month.
                      \"It is not length of life, but depth of life.\"

                      Ralph Waldo Emerson

                      Comment


                      • #12
                        Re: treatment for arrythimias/tachycardia

                        Lisa makes a good point about being detectives. Unfortunately, the medical science doesn't have enough tools to detect the exact cause of arrythmia. Thats why they try blocking beta receptors, calcium channels, etc, etc.
                        It seems, there are two lines of thinking on arrythmia treatments rate control and rythm control. Studies show that rate control is better and has equal or same advantage as rythm control. Also the rate control meds: BB, Ca ch. blockers, etc have less dangerous side effects compared to rythm control meds like rythmol,etc.
                        During all my research, best insite I got into arrythmia problems is from St. Jude med engineering dept. Any time there is abnormal beats, I have found it good to measure them myself and write down the patterns, and take it to my pacemaker technician.
                        In some of the people like us with HCM, over the years we are bradycardic a little bit for the body's requirment and we don't even know. It is not a true bradychardia in the sense but our heart rate could be 60 but the body needs blood at the rate of 75 which makes us bradychardic in the sense by 15bpm. So over time, the heart develops ectopic centers to fix this problem which end up misfiring eventually giving arrythmias..
                        Sorry I got little excited here...
                        I am having too much fun with cardiology these days.
                        good luck everybody
                        Ketan Thanki

                        Comment


                        • #13
                          Re: treatment for arrythimias/tachycardia

                          Ketan, soon, your doctor will have to get up before breakfast to stay ahead of you Linda

                          Comment

                          Today's Birthdays

                          Collapse

                          Working...
                          X