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Thanks Lisa


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Chuck B Find out more about Chuck B
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  • Thanks Lisa

    My wife and I thoroughly enjoyed the HCM meeting. It was especially good for her as a spouse of an HCM'er to see the slides and have the best specialists in the country explain the disease. I dont know how you do it - hold a full time job, be a mother, head the HCM association and deal with your own HCM. I am sure I speak for all, we will be forever grateful!
    Chuck B

    An inch is a cinch, a yard is hard

  • #2
    Re: Thanks Lisa

    Thank you Chuck...I will give you a little hint as to how it is done...I do nothing alone, I have the best teams around me in all areas of my life. Those teams help to keep everything running smooth and allow us to make progress everyday!
    At Packard I have a wonderful team ... At home I have an even better team. Here at the HCMA - well I have an army with various troops.. if you will... One of volunteers and members...One of doctors and One of organizers.
    It is with all these special people in my life that I am able to do what I do. I thank you for attending the meeting and I hope to see you at future events.

    Best wishes,
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)