If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Thanks Lisa

Collapse

About the Author

Collapse

Chuck B Find out more about Chuck B
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Thanks Lisa

    My wife and I thoroughly enjoyed the HCM meeting. It was especially good for her as a spouse of an HCM'er to see the slides and have the best specialists in the country explain the disease. I dont know how you do it - hold a full time job, be a mother, head the HCM association and deal with your own HCM. I am sure I speak for all, we will be forever grateful!
    Chuck B

    An inch is a cinch, a yard is hard

  • #2
    Re: Thanks Lisa

    Thank you Chuck...I will give you a little hint as to how it is done...I do nothing alone, I have the best teams around me in all areas of my life. Those teams help to keep everything running smooth and allow us to make progress everyday!
    At Packard I have a wonderful team ... At home I have an even better team. Here at the HCMA - well I have an army with various troops.. if you will... One of volunteers and members...One of doctors and One of organizers.
    It is with all these special people in my life that I am able to do what I do. I thank you for attending the meeting and I hope to see you at future events.

    Best wishes,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment

    Working...
    X