If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

How often should ICD's be interrogated?

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • How often should ICD's be interrogated?

    [How often should ICD's be interrogated?]

    Author: Reenie (---.gate2.misawa.attmil.ne.jp)

    Date: 04-11-02 00:10

    I'm very new to this board....This is my first day. I am really enjoying being able to read posts from people who have much more experience than I do about all of this. My husband was diagnosed about 2 years ago with assymetrical HCM. His thickening is mid-septal. Right now it isn't obstructive, but it's very severe. The latest echo he had showed a thickness of 5.2 cm. He is the first in his family to exhibit the disease, but it has to start somewhere. Anyway, he had an ICD implanted in Aug. 2000. He was told to have it interrogated every 6 months. When he went back, the doctor said he was doing so well he could stretch it to every 12 months if he wanted. A few months later we got a different internal medicine doc who researched some and, through another EP doctor, now says we have to have the interrogation every 3 months. Does anyone out there know what the standard of care is? My husband's only symptoms are occasional shortness of breath upon exertion and occasional palpatations. Sorry to be so wordy, but thought you would need all that info to help me.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: Sarah Beckley (---.dsl.mindspring.com)

    Date: 04-11-02 00:39

    Dear Reenie

    It sounds to me like your husband needs to see an HCM specialist. The HCMA office can give you the names of anyone close to you. 973-983-7429. Also, Lisa has an ICD and can tell you about her schedule, too.

    I don't have one, so I can't give you any first hand advice here, I'm sorry.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: Bob (---.dyn.optonline.net)

    Date: 04-11-02 01:20

    Hi Reenie,

    I recently received an ICD and my EP wants to interrogate every 3 months. I also received a patient's guide booklet by an independent publisher and it states that these checks are done several times a year. , My EP explained the purpose is primarily to verify the device is performing as intended (settings haven't changed, leads haven't degraded, battery strength is up there, etc.). These are sophisticated devices and we depend on them being ready at all times. So, even though a person may only exhibit mild symptoms, periodic checks of the ICD are prudent. I, personally would not feel comfortable going 12 months between interrogations. You might want to contact the manufacturer with this question?

    Good Luck,

    Bob

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: lisa (208.47.172.---)

    Date: 04-11-02 09:15

    Reenie,

    I would really like you to call the HCMA office and if possible have a copy of your husbands echo with you. I would like to confirm the measurements and suggests some specialists for you.

    Best wishes,

    Lisa Salberg

    President

    HCMA

    973-983-7429

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: Trisha Rosokoff (---.proxy.aol.com)

    Date: 04-11-02 11:30

    Reenie~I have an ICD and I go every 3 months too.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: midgerollins (---.obmo.socket.net)

    Date: 04-12-02 17:56

    I too go every 3 months with mine.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: Lisa (---.dyn.optonline.net)

    Date: 04-13-02 07:04

    When my device is new it is ever 4 months then down to every 3 when they see the battery is starting to show usage.

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: Reenie (---.pool1.misawa.attmil.ne.jp)

    Date: 04-14-02 03:23

    Thank you for all the advice. I will look up ah HCM specialist when we move. It seems like every 3 months is normal. We will probably stay with that schedule. I'll let you know if anything else develops.

    Reenie

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: Frank Myers (---.proxy.aol.com)

    Date: 04-22-02 16:38

    I've had an AICD FOR MORE THAN 7 YEARS (2nd one) and I have interrogations every 6 months. Personally, I feel that 12 mos. is too long. If there are complications, perhaps, each 3 mos., for a period, is justified. You indicated that your husband is having problems breathing etc. It sounds as though he needs medications to treat the heart and remove the water from his lungs, and if his weight is over the recommended limits, he may need to adjust that considerably. Be aware than the defibrillator does nothing more than correct the heart arrythmias, if they occur. It does not treat the heart medically. Again, that requires mredicine. The AICD will, for the most part, save one's life when serious rythmns problems occur. Good luck By the way, he needs a good Cardiologist. The Electrophysiologist, also a Cardiologist, administers to the AICD. Also, I have an Internist as our family doctor. They, all three, work unisence to treat my condition. The heart can trigger other medical issues than the Cardiologist does not treat. Very important, keeping your doctors for the long haul plays a large part in your/his overall treatment. Each new doctor that has to start over may not be in his best interest. Again, good luck.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: NURSE NANCY (207.109.18.---)

    Date: 04-24-02 15:40

    Stable patients are followed every 6 months.

    If they have any problems every 3 -4 months ie( med changes or reprogramming)

    IF THEY GET A SHOCK WE SEE THEM WITH IN THE WEEK IF THEY ARE STABLE, OR WITH IN 24 HOURS IF WE CAN . IF DIZZY OR PASSING OUT WE SEND THEM TO THE ER AND HAVE THE REP SEE THEM FOR US NOW.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: How often should ICD's be interrogated?]

    Author: Reenie (---.pool1.misawa.attmil.ne.jp)

    Date: 04-24-02 18:28

    My husband is stable, thank goodness. So maybe every 6 months is all right. I think maybe he heard the doctor wrong when he suggested he could go 12 months between checkups. I wasn't there. We will see what our new doctor has to say when we move in June. Thank you for all the posts.
    NOTE: This is a post from the previous forum message board.

Today's Birthdays

Collapse

Working...
X