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If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
Lynn and I were so excited that we are already here!!! Instead of breaking the trip into two days, I decided to go ahead and drive for 10 hours and we just checked into the Westin.
I always like to put the faces with the names. I will only be there to register those coming in on Friday. See you all then!! Hope you all have a safe trip! Hopefully it wont rain too much!!
I need all those hugs this year!!!
See you all soon!
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Have a great time guys, some day I hope to come down there, but right now I don't think they would let me into the US being from Toronto.
Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
So if you are capable of thought then you are capable of great things
Good luck and stay well.
Glen
Well everyone, We're here in NJ! I've finally met Tim and Lynn, I'm using Tim's laptop right now. Imagine that. Am heading down to meet new folks and renew acquaintenances. Lisa has things well under control and we'll try to post a few times. Linda
Well, I'm back home in Maryland. The conference was an absolute success. I'm sure we had well over 100 in attendance, but I don't think about those things at the time and so I didn't get numbers. Someone will post that for us. What a pleasure to meet so many and put names and faces together. The speakers were great, gave lots of time for questions and talking with individuals. I'm sure you will be seeing some postings from attendees very soon and they will most likely generate quite a few topics for discussion here. Wayne, would you post some background info about the check you were able to present to the HCMA? Other attendees - please jump in with comments and info. Share with the rest of our members. Linda
The meeting was wonderful. I learned a lot and the speakers were top notch. It was nice putting faces to so many names, too. I'm a little tired still, but it was a great trip. When I'm not so jet-lagged I will post more.
Reenie
Reenie
****************
Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.
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