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I just found this board today after simply typing in IHSS on the search site. I just wanted to say thank you so much for this site, I have just spent 2+ hours searching and have learned so much already.
I was diagnosed with IHSS (I am so behind that I still call it that) when I was 15 (I am now 25) after I fainted at Basketball practice. I have since been on 50mg of Atenolol a day and have had very few problems. I inherited this from my father (they diagnosed his problem the same time as mine). He played college football and has been very active even since the diagnosis. I have one brother, who has not been diagnosed with anything and also currently plays college football.
I just had an echo test after not having one in 3+ years. They told me that my HCM lies very low in my heart and way below the normal pattern of growth (which was good news to hear). They said that my father most likely has the same pattern of growth which is why he has been able to be so active. They also found an abnormal blood flow, in which my blood flows through the atrium (is that the right word?) before pumping through the heart. This also did not worry them because they said plenty of blood was still going through my heart.
Long story short, just wanted to know if others have this "low growth" and if that is a "better" form of HCM. I have been married for 3 years and we are talking about children. I would love to have kids, but am not willing to make dangerous risks. Any input would be appreciated! Also wanted to give encouragement to those who have recently found out they have HCM; I have lead a full and happy life and have not been stopped from doing anything (except marathons, but didn't have much interest in that anyway). Thanks so much!
Lori
I was diagnosed with IHSS (I am so behind that I still call it that) when I was 15 (I am now 25) after I fainted at Basketball practice. I have since been on 50mg of Atenolol a day and have had very few problems. I inherited this from my father (they diagnosed his problem the same time as mine). He played college football and has been very active even since the diagnosis. I have one brother, who has not been diagnosed with anything and also currently plays college football.
I just had an echo test after not having one in 3+ years. They told me that my HCM lies very low in my heart and way below the normal pattern of growth (which was good news to hear). They said that my father most likely has the same pattern of growth which is why he has been able to be so active. They also found an abnormal blood flow, in which my blood flows through the atrium (is that the right word?) before pumping through the heart. This also did not worry them because they said plenty of blood was still going through my heart.
Long story short, just wanted to know if others have this "low growth" and if that is a "better" form of HCM. I have been married for 3 years and we are talking about children. I would love to have kids, but am not willing to make dangerous risks. Any input would be appreciated! Also wanted to give encouragement to those who have recently found out they have HCM; I have lead a full and happy life and have not been stopped from doing anything (except marathons, but didn't have much interest in that anyway). Thanks so much!
Lori
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