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talking to lisa


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  • talking to lisa

    hi all,

    i finally talked to lisa today. and i want to urge all of you who, like i did, thought there wasn't any need for you to talk to her to also give her a call. it is amazing how much she knows about hcm and allied issues and she is an extremely empathetic person. she is very good at explaining things that our doctors may or may not have told us all about or that we may have felt shy/nervous about asking for more information on. whether you're symptomatic or asymptomatic, have questions or not, i think having someone like her who is willing to give so freely of her time and to talk about everything so sympathetically is an amazing resource and everyone should utilize it.

    thanks again lisa! i called dr. shah's office and scheduled an appointment--now i need to cross all the t's and dot the i's with my insurance as well.


  • #2
    Re: talking to lisa

    Mongo I couldn't agree with you more in regards to what a gift we have in Lisa. I too have recently had the pleasure of consulting with Lisa and like you I have made an appointment with Dr. Levor's office in Cleveland and will now work on business with insurance and also setting up travel plans.

    For those of you from the Cleveland crew, any help you can give on where to stay(best place with a medium budget), transportation tips, parking tips, hidden expenses etc. WE WOULD REALLY APRECIATE IT!


    Diana & Mike from Oregon


    • #3
      Re: talking to lisa

      You are both very sweet, I am glad I was able to help!
      You both asked very good questions and had valid concerns this is what the HCMA is about...having some place to go with these question.

      I think sometimes we all get a little nervous asking questions we may think the docs think are silly... so we do not ask.
      RULE 1 of the HCMA there are no Silly questions and if you do not understand something we will ALWAYS expain it again!
      RULE 2...Most Docs in general never think there are silly questions either so ask away that is what they are there for!

      Thank you for your kind words and my hope for you both is that you find the answers that help you live the best quality of life possible!

      Be well,
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #4
        Re: talking to lisa

        If you are shy and nervous like me, then you may feel wary of calling Lisa. However, I eventually called Lisa and let me tell you she is a wonderful person. You can tell in her voice that she cares and knowing that she knows what you are going through is comforting. She will answer any questions you may have and she will help you in any way she can, I am sure of it. Making the phone call may be the best thing I've ever done in regards to my care. Not that I am getting awful care here, as I feel my cardiologist are great. However, this specialist may clue me in on something I am unaware of or need. I was referred to Dr. Lever at the Cleveland Clinic.

        Thank-you Lisa!


        • #5
          Re: talking to lisa

          Anna, you are so right. Lisa is truly an amazing person. You won't be disappointed with your decision to go to Cleveland.


          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.


          Today's Birthdays