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obstruction as a threat to life


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liona Find out more about liona
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  • obstruction as a threat to life

    I was reading the other posts on this topic, and frankly they didn't have much to do with reality as I see it. I have struggled with blackouts and grey outs for 35 years. I thought the problem was neurological, partly because I also have a tethered spinal cord.

    As a result of these blackouts, I had 2 serious car crashes. I also fell in my bathtub and cracked my skull, resulting in the most insane and maddening 3 years of my life. The fall pulled on my optic nerves so badly, that I was rendered legally blind for 4 years. I have also had numerous falls, particularly on subway stairs in NYC that were so bad that I am surprised that I was able to walk away. These falls were the result of feeling faint due to the effort of walking the stairs.

    Now, if I had been killed by any of these incidents, it would not be listed as death due to complications of HOMC, but in truth, it would have been the case. Major obstruction makes you so accident prone that you are a disaster waiting to happen.

    Of course it has a major impact on life expectancy!!!!!

  • #2
    Re: obstruction as a threat to life

    You have a very good point.
    Linda - tell the story about the deaf person and the car accident... it brings home Lionas point.

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      Re: obstruction as a threat to life

      Let's see if I can remember the story.... A new doctor, just starting his practice, held the theory that anything a person might suffer from was hereditary, till he had his first hospitalized patient - a pedestrian hit by a car. He was just beginning to accept that maybe he didn't know quite everything yet, till he examined his patient and learned that he was deaf, that was why he didn't hear the car's horn blow, and didn't get out of the way in time. Deafness just happened to "run in the family", proving beyond a doubt, that everything is hereditary, even accidents. (But then I guess that would also make everything "pre-existing" - oh, dread!) Linda


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