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Finding HCMA is like finding my lost family

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RG Find out more about RG
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  • Finding HCMA is like finding my lost family

    Hi all.
    I cannot express in words my feelings on finding this great site and reading many pages for several hours. Each new page, each new story overwhelmes me. I am now a partner to your thought process, your joys and sorrows, apprensions and hopes. Till I saw this site, the only HCM people I knew were my father and brothers. Suddenly, in a few days I find myself part of my long lost global family. Thank you Lisa. Thank you all those who alongwith Lisa have made it possible. I know you are doing it with all your hard work, hearty involvement and also money. We know what it is to live with HCM and we are not alone. I am glad, I got connected to you all through the interent. I will keep posting. I will also tell you my story.
    RG

  • #2
    Re: Finding HCMA is like finding my lost family

    You are why WE are here! You and the thousands of others JUST LIKE YOU! We are unique in our disease and this sets us apart from so many...yet brings us closer together here in OUR community.
    You are welcome and I only hope to grow and provide more services to all with HCM.

    Be well,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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