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Great results 6 yrs post myectomy


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  • Great results 6 yrs post myectomy

    I was diagnosed with HOCM 7 years ago after passing out on a treadmill while running. After a year of beta blockers, I continued to have the lightheadedness I had always attributed to getting up too fast, 8-10 times per day. Anyway, before I had my surgery I could barely run for 2 minutes without breathing so heavy I thought I would die. Since my surgery I have had one child, I ran a ten mile race, and am currently expecting my second child at the end of june. I didn't realize how bad I felt until I had this surgery and felt good again. I was 24 years old when I had the procedure, and I would do it again in a minute. I have since become a cardiac sonographer myself, and when persons are diagnosed in our hospitals, I have been asked by our docs to speak to these people. Please feel free to contact my if you have any questions about my experience with this procedure. Good luck to all. Maria

  • #2
    Re: Great results 6 yrs post myectomy

    Maria, welcome and thank you for sharing your story. I'm glad that you feel so good now. Good luck with the new little guy or girl!


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      Re: Great results 6 yrs post myectomy

      Maria -
      Welcome and thank you for your offer to help others - I am sure people are going to take you up on that offer.
      I bet you have a really good eye for that septal measurement!

      Be well,
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)