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If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
To go the the meeting next month, that is. I took the plunge and bought my tickets today. So how many of you will I get to meet in person? I'd love to meet as many of you as possible...
Reenie
Reenie
****************
Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.
We normally get about 100 people to attend! While the data is great to hear there is NOTHING like being there...seeing people JUST like YOU (who look fine! yet have HCM ...we have all heard that one!)
I look forward to seeing as many of you as possible!!
Hope to see you all there!
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
I'm looking forward to meeting you. Four from our family will be attending. This will be my 3rd annual meeting - living in New Jersey makes it much easier! It will be a great day packed with interesting info.
Sure wish I could bring the kids, but its my daughter's 12 birthday on June 7 plus I have to work that whole weekend AND I'll be in microbiology class all summer. Just isn't going to work out this time. Maybe next year!
Michelle - mom to Krista and Tyler both HCM
Krista surgeries: 3/97 myectomy, 2/99 mitral valve replacement
Tyler surgery: 1/98 myectomy
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