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Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
Thanks again for the great advice. I plan to go into the meeting with Dr Spencer with an open mind and will make the decision after I have all of the facts. Until then I just plan to gain as much knowledge as I can about this condition and the options that I may be faced with.
This is far from a piece of cake! This is a complex procedure. What is even more important is the obstruction is only PART of the problem and this is a factor that is often overlooked. HCM is more than obstruction.
I have said this no fewer then 100 times ...move slow...ask questions and make the BEST choice for YOU .
Be well,
Lisa
Thank you for the detailed list of things I should consider. Since this is my busy time of year, I sort of put this medical problem on the back burner until tax season was over and now I am trying to get as much knowledge as I can about both procedures. My children have talked to friends of theirs who are in the medical profession and were told "Ablation is a piece of cake. Our cardiologists are doing so many of them every day, it is now a routine procedure". I am having trouble buying into that. I was reassured by, I believe, your comment that only cardiologists who specialize in doing ablations should be considered.
Thanks for being here for us.
Thanks for the input. I have been reading the messages on the Ablation/myectomy message board and was aware of the age thing as well as the many other things I need to consider. Since I am 68 years old, my age should not be a factor in which procedure is best for me. Hopefully. once I meet with Dr Spencer and go over the results of the echo and other tests he has arranged, I will have a better idea of what I should do.
Your question is not an easy one.
I would break down the question as follows -
1. Do I need septal reduction?
2. Have I tried all medications?
3. Is my mitral valve in need of repair?
4. Is myectomy best for me?
5. Is ablation best for me?
These questions need careful evaluation and it may not be in your best interest to leave only 24 hours for thought.
In some cases medication changes take weeks to work but then do provide significant relief from symptoms.
Kathy, part of the reason that it isn't often suggested for those under 50 is the lack of long-term data on the procedure in younger people. Other than that, I guess you should ask your doctor.
I have read several times here that most of the experts don't consider ablations for people under 50 yet all the people I know here who have had ablations have been under 50. some in their 20s, 30s and 40s. The ones I have heard from have all been successful so far. Is it just a certain institution that won't do them or whats the deal?
We encourage everyone to fully weigh all of their options and to ideally get two opinions from HCM specialists if they can when you get into surgical/invasive procedures like myectomy and ablation.
Dr. Spencer is very highly regarded, so you are way ahead of the game there.
The only thing I would ask is how old are you? It is my understanding that some experts won't do an ablation on anyone under 50 since the long term effects on ablations are not yet known.
If you do a search (the search button is at the top of the board) for "ablation" and "myectomy" in here, you will find a TON of opinions about both procedures.
And I'm sure others will post their experiences/feelings here too.
ALthough I have accessed this site many times in the past, I just recently discovered the wealth of information you guys share on the message boards. You have provided me with a good background to discuss septal ablation when I meet with Dr Spencer on May 14th. He has tentatively scheduled the procedure for the 15th. Is that rushing into it too quickly? I have discussed it with both my cardiologist and my primary doctor and they are convinced that I am a candidate for SEA. I would appreciate some imput from others. Thanks!
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