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What would you do?


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Reenie Find out more about Reenie
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  • What would you do?

    I know of a guy from my home town that died recently of a heart attack at age 35. His brother died of a heart attack in the 80's. The younger man who just died knew he had a heart problem and even had a "pacer." I think there are others in their family who also have heart problems. I don't know the family personally, but am debating whether or not to call them to see if it was HCM or not, or even just to see if I can direct them to good doctors who might know more than the local cardios. What do you guys think?


    PS, My sister knew the family more than I did, but I haven't lived there in 10 years so it's a little harder for me.

    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

  • #2
    Re: What would you do?

    Dear Reenie,

    Why don't you check with Lisa to see if any of the family has ever been in contact with the HCMA at some point. Also, Lisa has a lot of experience in how to talk to people in this kind of scenario. I definitely think they need a call from you or your sister (maybe that would work better?).

    Something like, "I'm so sorry for your loss. You know, this sounds a lot like what my husband has and we have found a lot of support with the HCMA. Have you heard of HCM (saying the whole name)?" And see how that goes.



    • #3
      Re: What would you do?

      These are difficult times for families and it is common for them to be so upset they can not take anymore information...therefore I say..move slowly. A card or a note letting them know they are in your thoughts and a simple line that explains your family too lives with heart disease and that you are there for them should they have any questions is a good start.

      There are many other conditions that can cause early death from "heart" problems so it may well be something other than HCM.

      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


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