If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

HCM vc HOCM

Collapse

About the Author

Collapse
kathyn2 Find out more about kathyn2
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    HCM vc HOCM

    Can anyone tell me what causes some people to have obstructive HCM? If everyone with hcm has a thickened heart, what causes some people to become obstructed? A simple question but I am sure not a simple answer. Also, does everyone that has an obstruction have a fast, hard, dynamic heart rate? Do people that do not have obstruction have this problem?
    Tags: None
  • #2
    Re: HCM vc HOCM

    Dear Kathy,

    Nope, no one really knows why some people become obstructive and some don't. It may turn out to be a particular genetic mutation, but that is merely a guess on my part.

    I don't have an obstruction, but I certainly have lots of tachycardia and a very hard heart beat. I'm sure that is true for a lot of us.

    take care,

    S

    Comment

    • #3
      Re: HCM vc HOCM

      Even among those with obstruction, the degree of obstruction varies with many people. I wish we did know why!

      Bob
      Cleveland Myectomy Crew
      Member since November 2002

      \"Chance favors the prepared mind!\"

      Comment

      • #4
        Re: HCM vc HOCM

        Kathy,

        Ditto. Nobody really knows. My septal thickness is only 1.5cm, but i have a large obstruction (100mm gradient), while others can have much larger septums and no obstruction at all. It just happens i guess

        Jim
        "Some days you're the dog... some days you're the hydrant."

        Comment

        • #5
          Re: HCM vc HOCM

          There is no answer that I have ever heard from any med. prof that clearly explains WHY...
          Ideas - the shape of the Mitral Valve? the pressures in the heart? Genetics? the moon..only kidding on that one

          When we know...then we can stop it, we hope.

          Best wishes,
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

          • #6
            Re: HCM vc HOCM

            Dr Shah called me yesterday and I asked him this question. He said it was a long answer and that he would tell me about it the next time I saw him (probably a long time from now! LOL). He actually thinks he knows why and he said he was going to Peru soon and giving a talk on this same topic. I wish I could go and hear what he has to say! I asked him if there would be a paper on this and he didn't expect to be doing one. What a shame! Kathy

            Comment

            • #7
              Re: HCM vc HOCM

              Kathy,

              How are you doing? I haven't heard from you for awhile.
              Daughter of Father with HCM
              Diagnosed with HCM 1999.
              Full term pregnancy - Son born 11/01
              ICD implanted 2/03; generator replaced 2/2005 and 2/2012
              Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

              Comment

              Previous template Next

              Today's Birthdays

              Collapse
              Working...
              X