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HCM vc HOCM

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  • #1

    HCM vc HOCM

    Can anyone tell me what causes some people to have obstructive HCM? If everyone with hcm has a thickened heart, what causes some people to become obstructed? A simple question but I am sure not a simple answer. Also, does everyone that has an obstruction have a fast, hard, dynamic heart rate? Do people that do not have obstruction have this problem?
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  • #2
    Re: HCM vc HOCM

    Dear Kathy,

    Nope, no one really knows why some people become obstructive and some don't. It may turn out to be a particular genetic mutation, but that is merely a guess on my part.

    I don't have an obstruction, but I certainly have lots of tachycardia and a very hard heart beat. I'm sure that is true for a lot of us.

    take care,

    S

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    • #3
      Re: HCM vc HOCM

      Even among those with obstruction, the degree of obstruction varies with many people. I wish we did know why!

      Bob
      Cleveland Myectomy Crew
      Member since November 2002

      \"Chance favors the prepared mind!\"

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      • #4
        Re: HCM vc HOCM

        Kathy,

        Ditto. Nobody really knows. My septal thickness is only 1.5cm, but i have a large obstruction (100mm gradient), while others can have much larger septums and no obstruction at all. It just happens i guess

        Jim
        "Some days you're the dog... some days you're the hydrant."

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        • #5
          Re: HCM vc HOCM

          There is no answer that I have ever heard from any med. prof that clearly explains WHY...
          Ideas - the shape of the Mitral Valve? the pressures in the heart? Genetics? the moon..only kidding on that one

          When we know...then we can stop it, we hope.

          Best wishes,
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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          • #6
            Re: HCM vc HOCM

            Dr Shah called me yesterday and I asked him this question. He said it was a long answer and that he would tell me about it the next time I saw him (probably a long time from now! LOL). He actually thinks he knows why and he said he was going to Peru soon and giving a talk on this same topic. I wish I could go and hear what he has to say! I asked him if there would be a paper on this and he didn't expect to be doing one. What a shame! Kathy

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            • #7
              Re: HCM vc HOCM

              Kathy,

              How are you doing? I haven't heard from you for awhile.
              Daughter of Father with HCM
              Diagnosed with HCM 1999.
              Full term pregnancy - Son born 11/01
              ICD implanted 2/03; generator replaced 2/2005 and 2/2012
              Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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