Can anyone tell me what causes some people to have obstructive HCM? If everyone with hcm has a thickened heart, what causes some people to become obstructed? A simple question but I am sure not a simple answer. Also, does everyone that has an obstruction have a fast, hard, dynamic heart rate? Do people that do not have obstruction have this problem?
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HCM vc HOCM
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Re: HCM vc HOCM
Dear Kathy,
Nope, no one really knows why some people become obstructive and some don't. It may turn out to be a particular genetic mutation, but that is merely a guess on my part.
I don't have an obstruction, but I certainly have lots of tachycardia and a very hard heart beat. I'm sure that is true for a lot of us.
take care,
S
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Re: HCM vc HOCM
Kathy,
Ditto. Nobody really knows. My septal thickness is only 1.5cm, but i have a large obstruction (100mm gradient), while others can have much larger septums and no obstruction at all. It just happens i guess
Jim"Some days you're the dog... some days you're the hydrant."
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Re: HCM vc HOCM
There is no answer that I have ever heard from any med. prof that clearly explains WHY...
Ideas - the shape of the Mitral Valve? the pressures in the heart? Genetics? the moon..only kidding on that one
When we know...then we can stop it, we hope.
Best wishes,
LisaKnowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
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Re: HCM vc HOCM
Dr Shah called me yesterday and I asked him this question. He said it was a long answer and that he would tell me about it the next time I saw him (probably a long time from now! LOL). He actually thinks he knows why and he said he was going to Peru soon and giving a talk on this same topic. I wish I could go and hear what he has to say! I asked him if there would be a paper on this and he didn't expect to be doing one. What a shame! Kathy
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Re: HCM vc HOCM
Kathy,
How are you doing? I haven't heard from you for awhile.Daughter of Father with HCM
Diagnosed with HCM 1999.
Full term pregnancy - Son born 11/01
ICD implanted 2/03; generator replaced 2/2005 and 2/2012
Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.
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