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Ralph I love my family. We have between us 4 great children and they have 9 great children. My passion is flyfishing. I am lucky to live within 5 miles of a great trout river, the Chattahoocee in Georgia. Find out more about Ralph
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  • Grandchild?

    Hi,

    I have HOCM and had my 31 year old daughter tested last summer while she was pregnant with her son. She was found to be free of HCM, thank God! I understand the chances of her children having it are slim to none, is that correct? I was frantic until she had the tests, and of course quite relieved once she was found clear of HCM.

    Ralph

  • #2
    Re: Grandchild?

    Dear Ralph,

    Good news, bad news....

    Yes, it is true that there is a very tiny chance that her child will have HCM. However, your daugher should still continue to get echoes every 5 years or so. There is still a small chance that she can develop HCM later in life. But if the family pattern is early diagnosis, this bodes well for her being clear. I hope I haven't rained too hard on the parade. Better safe than sorry. Personally, I think the odds are way, way in your daughter's favor at 31.

    S

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    • #3
      Re: Grandchild?

      Ralph, sent you an email in regards to Hopkins. Hope all is well
      Chuck B

      An inch is a cinch, a yard is hard

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      • #4
        Re: Grandchild?

        Ralph, welcome to the board. I'm happy to hear you daughter is clear. Sarah gave you good info in her posting. Unless the genetic mutation is identified and then tested for in each individual, it is not possible to know who is carrying the gene. This is complicated by the fact that not all families' mutations are identified and there are many different presentations. At least you have the advantage of knowing of the need for screening for the presence of HCM, and that is quite a blessing. Things look good so far and lets continue to hope for the best. Linda

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