If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you
If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
I have been a long term member of HCMA, but this is my first time on this Forum. I have been treated for HCM since 1997 and just received my fourth pacemaker/AICD unit. I would love to hear from anyone, especially HCM patients in the Maryland area.
Wayne , welcome to the message board. You must certainly hold the record for pacer/AICD implants! I just posted a message about a potential meeting in the DC area. Are you and family interested? Linda
Hey, Wayne! I'm in the Maryland area (Columbia to be specific). I am seeing a cardiologist at Johns Hopkins. I'm curious as to why you've had so many implants.
I was pleased to see that there might be a meeting in the Maryland/DC area. Maybe we'll see each other there!
wayne, I am also in the D.C.area.I am looking forward to talking, meeting fellow HCM ers in this area ... hopefully at the meeting. I ve noticed more and more postings from people in this area. I also see a doc at Hopkins.. W
Hi guys, in northern Va I know a place that has excellent crabcakes. It's between Manassas and Warrenton on Hwy 29, just south of I-66. I forget the name, but when getting off 66, go south on 29. It'll be on the right. Haven't lived there in about 4 years, but can't imagine it going out of business. I think it was called the Crab Shack. Wish I could join you guys. Enjoy!
Reenie
Reenie
****************
Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.
Wayne, welcome to the board...
FYI... Wayne is not really a newbie... he is a long time member... just not a cyber guy in the past!
Wayne, I think your gonna like it out here!
Be well,
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Tweet
. Linda
Comment