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Sandy H Find out more about Sandy H
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  • Recovering

    Hi Fellow HCMers.
    I am home from the hospistal. Surgery was not as I expected i.e. through the chest, but through the back, from shoulder blade to arm pit. Pain is tremendous, but Percocet is marvelous. They took out the middle lobe on the rt side & lymph nodes. Prognosis is not as positive as I would like, but I am keeping a positive attitude for now.... have to keep my familiy's spirits up, also. Still it was strictly by the grace of God that ithis was discovered when it was and I do know that prayer has kept me buoyed up thus far so would deeply appreciate continued prayer.
    For Sarah... Dr Klarich participated in my stress echo & made sure I had a very thorough heart check up prior to surgery...she's a dear, isn't she? I am told my heart is very strong. That's good news. Thanks to all for their support.

  • #2
    Sandy, I'm glad you came through so well. I'm still praying for you. I don't know anything about lung cancer, but you mentioned the lymph nodes. I'm assuming they are trying to determine if any had spread. My mom had lymphona in 2001 and finished chemo over a year ago. She's in total remission right now. Thank the Lord. I say that to let you know that lymphoma is treatable. I pray you will be as comfortable as possible and heal quickly.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      Re: Recovering

      Hi Sandy,

      So glad to read that you are home and able to at least jump online briefly. I am keeping you in my thoughts and prayers and know that things will be smoothing out for you. Hang in there through recovery, I know you will do beautifully!

      All the very best,

      P.S. Now go get some rest!!
      Lynn Stewart
      HOCM 4/2002
      Cleveland Myectomy Crew 8/2002


      • #4
        Re: Recovering

        I am glad your home, anyone who thinks you can rest in a hospital has never been in one for very long

        Attitude is such a large part of healing and well being... While quality medical care is extremely important without a good attitude healing is difficult...so stay positive

        If Chemo is needed make sure that your cardiologist is involved with your care. There is a woman who visits the board who had cancer many years ago and is doing great today ..HCM and all.

        You are in my thoughts and prayers,

        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        • #5
          Re: Recovering

          Dear Sandy,

          Glad to hear you are home. Take good care of yourself. A friend of mine had cancer at 26 about 5 or 6 years ago and she is doing great. You will, too!!!

          Dr. Klarich is fantastic! Total trooper and total expert. It's great she is on your team.

          keep us posted and don't get toooo happy on those percocet!



          • #6
            Re: Recovering

            Hi Sandy,

            Hang in there, you're doing great! I had kidney cancer and HCM at 38, and everything has turned out fine just as i am sure it will for you. Lisa is right about resting in hospitals, isn't she? My stay was for five days. I think they watch you until they see you sleeping, then come in and shake you awake, then run away real quick. I've never been able to prove it, but i think it's a little game they play at the nurse's station. LOL.

            I'll be thinking about you

            "Some days you're the dog... some days you're the hydrant."


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