If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Here we go again....

Collapse

About the Author

Collapse

wkevind Find out more about wkevind
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Here we go again....

    Seven years ago (6/08) I had my septal myectomy. All had been well.
    So well that I was complacent, not negligent, just relaxed in the knowledge that I was "fixed". Then three weeks ago for no reason I briefly passed out. I blamed it on the heat and humidity, not hydrating enough, anything but HCM.
    Two days later while giving a fencing lesson another brief incident.
    Talked to my new cardiologist (the old one retired) and he suggested a monitor with telemetry for 28 days. Three days later I got a call at 3:00AM from the Dr...."I need you to go to the emergency room NOW"
    That burst my complacency bubble!
    I am now sporting an ICD.
    The monitor detected three separate incidents where m heart stopped for between five and nine seconds.

    I HATE THIS DISEASE/CONDITION

    I was getting spoiled not worrying about it, I am glad this was caught but I resent this slap of reality.

  • #2
    Re: Here we go again....

    The good thing is, you were awakened at 3 am by a doctor who could have said - "see me first thing in the morning." Yea, no fun being bionic, but the alternative is worse.
    Marc
    Diagnosed @ 48
    Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
    Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
    AICD - Valentines Day '08, Spark Plug replaced 11/14
    After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
    Quietly going insane . . .

    Comment

    Working...
    X