If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

Article: Rare heart disorder seems underdiagnosed in blacks


About the Author


Tommy Mac Find out more about Tommy Mac
  • Filter
  • Time
  • Show
Clear All
new posts

  • Article: Rare heart disorder seems underdiagnosed in blacks

    March 19 (Reuters Health) - "African Americans make up the majority of athletes felled by sudden cardiac death as a result of a rare inherited disorder in which the heart cannot pump blood properly, researchers said Tuesday."

    Tom Mc.
    Apical HCM

  • #2
    About 1 yr ago the data was published showing that those with SD on the playing field are African American over 50% of the time.
    Yet only 12% of those with HCM are Af. American... WE NEED TO GET THE word out to this population that HCM strikes anyone regardless of color, nationality, gender or age!
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)