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Afib

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meggy8868 retired teacher; had my first echo which indicated HCM in 1999 but was not told I had the condition.
meggy8868
Ventricle
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    meggy8868
    Ventricle

  • meggy8868
    replied
    Re: Afib

    Dr. John M is very good. Thanks so much. What do you think of taking 400 units of Vitamin E for blood thinning. I can't do aspirin two days in a row without gastric problems.
    Or even Tumeric? I got as high as 1.7 on INR and had hemorrhages in the eye and was taken off.The EP said I couldn't take new drugs because the problem is valve not lifestyle if I understood him correctly. Wafarin was hard on me. Took my stomach about a month to get used to it (stomach pain) and then the bleeding in the eyes, looked like a prize fighter. Going back to study John M.

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  • Jall
    Major Contributor

  • Jall
    replied
    Re: Afib

    The new generation of anti-coagulants (Pradaxa, Xareleto, etc.) don't need the constant blood work like Warfarin and you might see if someone could call in a Rx for some. As noted above, the real risk of afib is stroke. Some people use a "pill in the pocket" strategy, taking the anti-coagulant when they go into afib to reduce the risk of stroke. If I was several months out from seeing somebody, I think I would consider that. The one downside to afib you can't come back from is stroke.

    You might also google "Dr. John M" who has a blog on afib. He is an EP and also has afib himself. He has really well written pieces on afib and its treatment. Again, best wishes.

    Leave a comment:

  • meggy8868
    Ventricle

  • meggy8868
    replied
    Re: Afib

    Hi Gordon & Mcube: I had an EKG which showed AFIB. I stayed in the ER for 5 hours and they were about to transfer to me Rapid City which had a cardiologist but I came out into normal rhythm. I was given 4 chewable baby aspirin because I told them that cardezim in an IV dropped by BP to 37 systolic. Aspirin gives me stomach pains as I had 5 years on Advil for a foot injury and took it too long and too much (under a doc's advice). Since coming out of AFIB, I have had what I call aftermath, feeling like I have been run over by a truck and a lot of chest pain. I have been unable to get to Mayo as I had car trouble on the trip and cancelled. They are booking 3 months out and I cannot get in until April now and I asked for anyone. Must be that mayu people are discovering their HCM. the EP/Cardiolgist is not near (70 miles away) and can't get in right away. Now we are in a major weather system 20 below on mercury and lots of wind chill. I know I am out of AFIB because when I am in it, I can't function, talk, or barely move. But I feel on the cusp so to speak.
    meggy8868
    Ventricle
    Last edited by meggy8868; 01-03-2015, 05:41 PM.

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  • gfox42
    Forum Administrator

  • gfox42
    replied
    Re: Afib

    Hi Meggy,
    Toughing it out isn't a good strategy - as others have pointed out, it can be dangerous, and the more you're in afib, the more you tend to stay in (or go into) afib. What have they said during your ER visits?

    Gordon

    Leave a comment:

  • mbcube
    Moderator

  • mbcube
    replied
    Re: Afib

    Its important to really identify if this is Afib or not. It could be anxiety of some sorts (and perfectly natural) as well. But, you do have to be cautious should this happen. When I've had bouts of tacky (My AICD's doesn't register these as Afib) I take a baby aspirin and a small dosage of my BB (like half of 25mg of atenolol) if my first course of action doesn't work, which is relaxation & breathing exercises. Do you have a local EP?

    Leave a comment:

  • meggy8868
    Ventricle

  • meggy8868
    replied
    Re: Afib

    Thank You Jall and Cynaburst for the replies. I called the EP office and told the nurse but the "soonest" I could get in is Jan 22. I will try again. I am not currently in AFIB. Jall tried to look up the site and couldn't reach it. Are addresses supposed to have dots? I would think forward slashes instead. But will try to find Dr. John Day via google. I will do everything lifestyle possible. I was on warfarin. Just ate up my stomach and at 1.8 INR my eyes were hemorrhaging and the eye doc didn't like that. So the primary took me off as it had been since Aug since I had an episode. Now I have had two within two months. And the ER's tend to be a nightmare. The last one was very good only focusing on the problem at hand, and the one close to home had so many protocols that it was exhausting, asking me questions back to childhood and even how many times I brushed my Teeth. I took my HCM packet with me to te last ER and the Dr reviewed it but when I would bring my records locally they would just ignore them and treat me as an anxiety case.
    meggy8868
    Ventricle
    Last edited by meggy8868; 01-03-2015, 01:37 PM.

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  • Cynaburst
    Senior Member

  • Cynaburst
    replied
    Re: Afib

    Afib is NOT something that should be ignored. Even short bursts of afib put one at risk for a major stroke. If you have any episodes of afib, you should be on appropriate anticoagulation therapy.

    As to what to do about it, there are medications that can control it, and there are procedures that can be done to try to eradicate it, like a catheter ablation in the long term, or a cardioversion in the short term.

    But, as the previous poster said, the longer you stay in a fib, the more likely it is to stay and the risks of ignoring it are just too high -- possibly life ending or causing significant disability.

    Best advice is to get to a specialist ASAP. I am sure if you called on Monday and explained the urgency of your situation, you could get in sooner.

    In any event, you should see an Electrophysiologist with experience treating Afib in those with HCM.

    Leave a comment:

  • Jall
    Major Contributor

  • Jall
    replied
    Re: Afib

    Sorry to hear of your afib issues. There is a saying that "afib begets afib" so that the longer and more often you are in it, the more likely it will hang around. You can try anti-arrythemia drugs, but they are not without risk and side effects. Here is a link to an article with some lifestyle suggestions that may or may not work: http://drjohnday.com...l-fibrillation/ I know talking about lifestyle things offends some people, but nothing suggested in the article isn't something we should not do anyway. I just had my second ablation this past Monday and hopefully have the afib licked for good. I went into afib/aflutter in September 2013 and was in it consistently despite multiple cardioversions. If you pursue the ablation route, get someone very expierenced, particularly with HCM patients. Ablations are more difficult with HCM patients and you will need an expierenced hand. Best wishes. jeff

    Leave a comment:

  • meggy8868
    Ventricle

  • meggy8868
    started a topic Afib

    Afib

    What is the best thing to do when going into AFIB?

    How can it be prevented.

    I've been to the ER 3 times now in 2 months. I am told to avoid stress but the events have occurred while lying down or resting. I get very incapacitated with these occurrences. The slightest movement feels like I am dying. The chest feels crushed.

    I haven't made it to Mayo yet because of their appointment schedule probably won't make it until April and won't see my cardiologist for 22 days and he doesn't really want my case.

    Will it go away if I jus tough if out?

    Does anyone else feel as if they have to live a life sans emotion?

    I can't even watch an exciting movie, it is too strenuous for me and my chest begins to hurt. I think my quality of life is going down hill, very down hill. I am 73 and have no relatives near to take care of me.

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