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My Famous Heart

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liona Find out more about liona
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  • My Famous Heart

    Well, I had the cardiac cath test at Roosevelt Hospital on Tuesday. Then Wednesday I went to see Dr. Sherrid. He greeted me by saying, Come in and let me hear that Famous heart of yours again------

    They said that my resting gradient was not bad, but the minute I tensed any muscle, the gradient jumped off the charts. Arteries were totally clear. But nerve decifiencies in my heart make a myectomy seem fairly risky. Afterwards, I would be totally dependent on a pacemaker, and if the pacemaker developed a problem, I be immediately dead.

    So, we decided to settle for the ablation, which wouldn't kill off more of the nerves that are left in my heart. Dr. Sherrid said they would get the most experienced Doctor and import him for a day to do the ablation on me. I am thrilled that he is working so diligently on my case!!!

    He said I should shut down the active parts of my lifestyle and patiently wait for a while------ I am so grateful to him.

    I think I will wind up as a clinical writeup---- they seem to all be talking about MY FAMOUS HEART. I know I am a difficult case, but if help is humanly possible, I know they will get the job done.

  • #2
    Hi Liona -

    Ya know, I always heard that if you are going to do something, do it well !!! It sounds like you are certainly doing that.... Do you have a date for the ablation? I'm glad to hear that your docs are willing to do whatever it takes to give you the best care possible. Keep us all updated.

    SheliRenee
    Mom of Keanu
    4 years old (will be in March)
    Dx at 2 days old with Biventricular hypertrophy
    Dx at 6 weeks with HOCM
    Dx at 5 months with V-tach
    Dx at 3 with Noonan Syndrome

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    • #3
      Liona,

      I'm glad that you and your "famous heart" are both happy with your doctor and with the treatment plan that has been set. I hope that everything will go smoothly for you. I'm just so happy for you!

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        Glad to hear your on the path to treatment!
        FYI being pacer dependent is not so bad... my dad is and I know there are a few of you out there too...
        In your "famous" case it sounds like your doig what is best for you and I wish you all the best!
        Keep us up to date on your progress!
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #5
          How interesting! A case where an ablation is less risky than a myectomy. That goes to show that Lisa is right. We are all different. Different treatments for different folks. I wish you well Liona. Please let us know how it goes and when you have your ablation.

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