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UPDATED 4/15/2003
Where:
Morristown NJ - The Westin Hotel
June 6-8 2003
Agenda: Friday June 6, 2003
Agenda: Friday June 6, 2003 Registration opens at 4:00pm and runs through 8:00pm
6:30pm-8:30pm Welcome and opening remarks dinner will be served at 7:00pm
8:30pm-9: 30pm Fund raising workshop –How can you help the HCMA. This is a brief discussion group on ideas as to how to run a fundraiser that will raise awareness of HCM as well as much needed funding to continue our work.
Saturday, June 7, 2003
8:15-8:55am Registration
9:00am Welcome address by Lisa Salberg, President and Founder of the HCMA
9:30am Dr. Barry Maron, Director of the HCM Clinic, Minneapolis Heart Institute Foundation, MI: An overview of HCM: A history, an explanation and a look to the future. Athletics and HCM - The real story on what is best for those with HCM
10:10amDr. Mark Sherrid, Hypertrophic Cardiomyopathy Clinic, St. Luke’s Roosevelt Hospital Center, NYC: Beta Blockers, Calcium Channel blockers, diuretics, antiarrhythmics, - What do they do and how to know which is best for each person? And What drugs to avoid with HCM?
10:40am-10: 55am Break
10:55amDr. Stephen Winters, Director of Electrophysiology, Morristown Memorial, NJ: The use of implantable defibrillators in HCM. What is new in the EP world for those with HCM New treatments for a-fib?
11::25am Dr. Harry Lever, HCM Clinic - Cleveland Clinic, Cleveland OH. :Septal reduction Myectomy and Alcohol Septal ablation how to know which is right for you?
12:00 noon Lunch -Buffet style- (During lunch our panel will answer your questions.)
1:15pm Dr. Martin Maron, The HCM Clinic at NEMC - Tufts, Boston MA :The meaning of obstruction in 2003.
1:45pm Dr. Carolyn Ho, Brigham and Woman’s Hospital - The Seidman genetics lab at Harvard, Boston MA: The current standing of genetics in HCM - what do we know, what do we think we know and what does it mean to families with HCM.
2:15pm-2:30pm Break
2:30pm Dr. Steven Oman - HCM Center at the Mayo Clinic, Rochester, MN: The role of an HCM specialty center for the evaluation, treatment and care of your HCM.
3:00pm Dr. Robert Pensack: Hope and HCM: The importance of hope in living with a life threatening disease.
3:30pm Lisa Salberg: HCM and the workplace and your rights as a patient - Communication skills that will improve your employers understanding of HCM and your relationship with your health care provider.
4:00pm Panel will be open for questions
4:45pm Meeting closes for the day.
6:00pm Dinner social - - Time to spend with each other as well as some of our gracious speakers. (Additional fee of $25.00 per adults -children $10.00)
7:30pm Regional Representatives - -How to become an official Regional Rep of the HCMA. Those interested in attending sign up at the registration desk.
8:00pm How to run a heart screening event in your community: Presented by Sharon Bates
***The Youths with HCM group will be participating in various activities throughout the day. Some of our speakers will be having mini talks with them. A group leader will be monitoring the activities and maintaining and environment of learning and fun!
Sunday Morning:
10:00am-12:00 Brunch –No agenda just for fun.
HOUSING INFORMAITON:
The Westin Morristown
2 Whippany Road
Morristown, NJ USA 07960 (973) 539-7300 fax: (973) 984-1036. I-287, southbound, exit 36, left lane to light, left to stop and left 1 mi. to hotel; northbound exit 36A through Morris Ave., 0.3 mi. following signs. No pets. Rates: $79-$169. **Special room prices MENTION HCMA meeting** 200 rooms, 6 stories. Interior corridors. Dining room, restaurant. Free and pay movies; 8 efficiencies, cable TV, non-smoking available, area transportation. Recreation: sports court, outdoor pool, playground.
How to Register: Fax to 973-983-7429, mail to the HCMA or call in to the HCMA office at 973-983-7429 – EMAIL to [email protected]
Where:
Morristown NJ - The Westin Hotel
June 6-8 2003
Agenda: Friday June 6, 2003
Agenda: Friday June 6, 2003 Registration opens at 4:00pm and runs through 8:00pm
6:30pm-8:30pm Welcome and opening remarks dinner will be served at 7:00pm
8:30pm-9: 30pm Fund raising workshop –How can you help the HCMA. This is a brief discussion group on ideas as to how to run a fundraiser that will raise awareness of HCM as well as much needed funding to continue our work.
Saturday, June 7, 2003
8:15-8:55am Registration
9:00am Welcome address by Lisa Salberg, President and Founder of the HCMA
9:30am Dr. Barry Maron, Director of the HCM Clinic, Minneapolis Heart Institute Foundation, MI: An overview of HCM: A history, an explanation and a look to the future. Athletics and HCM - The real story on what is best for those with HCM
10:10amDr. Mark Sherrid, Hypertrophic Cardiomyopathy Clinic, St. Luke’s Roosevelt Hospital Center, NYC: Beta Blockers, Calcium Channel blockers, diuretics, antiarrhythmics, - What do they do and how to know which is best for each person? And What drugs to avoid with HCM?
10:40am-10: 55am Break
10:55amDr. Stephen Winters, Director of Electrophysiology, Morristown Memorial, NJ: The use of implantable defibrillators in HCM. What is new in the EP world for those with HCM New treatments for a-fib?
11::25am Dr. Harry Lever, HCM Clinic - Cleveland Clinic, Cleveland OH. :Septal reduction Myectomy and Alcohol Septal ablation how to know which is right for you?
12:00 noon Lunch -Buffet style- (During lunch our panel will answer your questions.)
1:15pm Dr. Martin Maron, The HCM Clinic at NEMC - Tufts, Boston MA :The meaning of obstruction in 2003.
1:45pm Dr. Carolyn Ho, Brigham and Woman’s Hospital - The Seidman genetics lab at Harvard, Boston MA: The current standing of genetics in HCM - what do we know, what do we think we know and what does it mean to families with HCM.
2:15pm-2:30pm Break
2:30pm Dr. Steven Oman - HCM Center at the Mayo Clinic, Rochester, MN: The role of an HCM specialty center for the evaluation, treatment and care of your HCM.
3:00pm Dr. Robert Pensack: Hope and HCM: The importance of hope in living with a life threatening disease.
3:30pm Lisa Salberg: HCM and the workplace and your rights as a patient - Communication skills that will improve your employers understanding of HCM and your relationship with your health care provider.
4:00pm Panel will be open for questions
4:45pm Meeting closes for the day.
6:00pm Dinner social - - Time to spend with each other as well as some of our gracious speakers. (Additional fee of $25.00 per adults -children $10.00)
7:30pm Regional Representatives - -How to become an official Regional Rep of the HCMA. Those interested in attending sign up at the registration desk.
8:00pm How to run a heart screening event in your community: Presented by Sharon Bates
***The Youths with HCM group will be participating in various activities throughout the day. Some of our speakers will be having mini talks with them. A group leader will be monitoring the activities and maintaining and environment of learning and fun!
Sunday Morning:
10:00am-12:00 Brunch –No agenda just for fun.
HOUSING INFORMAITON:
The Westin Morristown
2 Whippany Road
Morristown, NJ USA 07960 (973) 539-7300 fax: (973) 984-1036. I-287, southbound, exit 36, left lane to light, left to stop and left 1 mi. to hotel; northbound exit 36A through Morris Ave., 0.3 mi. following signs. No pets. Rates: $79-$169. **Special room prices MENTION HCMA meeting** 200 rooms, 6 stories. Interior corridors. Dining room, restaurant. Free and pay movies; 8 efficiencies, cable TV, non-smoking available, area transportation. Recreation: sports court, outdoor pool, playground.
How to Register: Fax to 973-983-7429, mail to the HCMA or call in to the HCMA office at 973-983-7429 – EMAIL to [email protected]
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