If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

I Love my Cardiologist!

Collapse

About the Author

Collapse

Dolly W Find out more about Dolly W
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • I Love my Cardiologist!

    I just wanted to share some good news with everyone. I'm sure that most HCM'ers know how difficult it is to find a cardiologist (non-specialist) that we feel confident in handling our condition.

    In January I was having episodes of multiple pvc's and was feeling really bad. My cardio ordered holter monitor (twice), but couldn't find anything wrong. When I saw her today, she told me that she had even called Dr. Nishimura at Mayo to make sure that she didn't miss anything. That really increased my confidence in her!

    So, even though she is not a specialist, it makes me feel better knowing that she double checks everything to insure my well being.

    D
    HOCM, Septal Myectomy 10/02 (Mayo Clinic), Medtronic ICD 10/07, TIA 10/07

  • #2
    That is wonderful... knowing that your docs will reach out to specialists is wonderful!
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Dolly,

      Great news!

      The cardiologist i respect more than anyone i've ever seen, is my guy in Montana who came right out and said 'Jim, this is not my area of expertise and i encourage you to see someone who can give you specific testing and treatment for this disease'. So i know what you are talking about! I sure do miss him. Too bad he's two thousand miles away

      Glad to hear you found yourself a good one! Take care,

      Jim
      "Some days you're the dog... some days you're the hydrant."

      Comment


      • #4
        My exciting day!

        I was going to make a seperate thread for this but this seamed like a good place for it if you bear through the first part.

        This morning, 3/26, I was in my cardio rehab class with only one week to go. Just after warm-ups, I was getting ready to go on the treadmill and I had an irregular heart rhythem. I had had these before, they last only about 2 seconds and go away. They only occur infrequently and I have not had an episode in over six months. The only difference today made was it got recorded on a monitor. This had never happened before.

        The staff at rehab reacted immediatly and kept me from exercising (even though I wanted to). The took the printout to the cardiologist in the building who recommended that I see my local cardio. The staff then faxed the information to him and, at my request sent it on to Dr. Lever in Cleveland. The printout showed that I had had a 4 beat run of V-Tach.

        Once at work I got an appointment immediatly with my local and received a call from Dr. Lever. When I went in to see my local cardiologist, we discsussed things for about 10 minutes. Dr. Lever's recommendation was to have a 48 hour holter monitor done which my local fully agreed with. I asked him to forward the results to Dr. Lever and call him to discuss if any further treatment (possible ICD) would be required. My local cardiologist replied:

        "Bob, I know when I am out of my element and I welcome any input from a specialist!"

        Wow! Between him, Dr. Lever and his staff, and the staff at the rehab, I don't think I could find finer care. I am a lucky guy.

        Right now, I am feeling fine with no problems since this morning. I am currently wearing a 48 hour monitor. When the results are in all of us will be putting our heads together to figure it all out. I will keep everyone posted as to what happens.

        Bob
        Cleveland Myectomy Crew
        Member since November 2002

        \"Chance favors the prepared mind!\"

        Comment


        • #5
          Bob... you made my day! This is what I am talking about... WE create a team to provide us with the care we need...each of us play a role on that team...the local doc, the speciaist, the patient and the support staff! THIS IS HOW IT WORKS BEST!!
          Thanks for sharing this story!!!!!
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment


          • #6
            Bob, thanks for sharing. It's so great to hear when things work like they are supposed to! Everyone was working together and you will gain the benefits. Linda

            Comment


            • #7
              You the man. Thank you for sharing that! I'm hoping that my specialist when I get him or her will work well with my local cardiologist and my pcp.
              Thanks for brightening my day!!

              Comment

              Today's Birthdays

              Collapse

              Working...
              X