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  • #1

    Publishing option and i am a new member

    Hi, my name is Virginia Johnston. I was diagnosised with HOCM last November and had a myomectomy in December. I am a 21 year old senior nursing student at Kent State University. I am a part of the Honor's college and for my senior project I wrote a paper about my experiences with HOCM. My instructor is going to attempt to publish it in the American Journal of Nursing. I felt if this was published, others with HOCM may want to read it to know they are not alone. I will try to keep things updated here.
    Heart nurse by day, Heart Patient by night
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  • #2
    Feel free to send a draft to the HCMA - we can publish it in our newsletter!
    Best wishes!
    Lisa
    PS Welcome to the board!
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Hi. Welcome to the HCMA board.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        Welcome, welcome, welcome. I look forward to your contributions. I haven't been on this board for long myself but so far the support is outstanding. My journey has been blessed and I hope yours is as well.

        Diana

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