If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

Saving Lives and Making a difference...


About the Author


Barely Heart
Find out more about SharonBates
  • Filter
  • Time
  • Show
Clear All
new posts

  • Saving Lives and Making a difference...

    I was at a School Board Meeting last night in Phoenix, AZ. During the meeting I ran into a former high school football coach, Dave, of my son, Anthony. Anthony died from undiagnosed HCM at age 20 while he attended college and played football at Kansas State University, Manhattan, KS in July, 2000. As most of you know, my mission in life has changed to advocate heart screenings at high school preparticipation sports physicals. With early detection we can save lives!

    The Anthony Bates Foundation and HCMA have performed almost 1,000 FREE echocardiogram screenings. Over 6% of the young people (between age 14 & 40) we screen have abnormal findings and are encouraged to get full cardiac exams. I track these people with surveys and letters. Sometimes I hear from them but not always.

    That is where this former high school football coach comes in. Last night Dave told me a story about a trip in San Diego he was on last weekend. It was during this trip he met a man with a Manhattan High School shirt. When Dave saw him he asked if he knew Anthony Bates. The man said, "I never knew Anthony, but I know Sharon Bates!" He went on to tell Dave, "She did a heart screening event in Manhattan last year and they disovered two of our MHS students have HCM! Now these kids are on medication and they are alive!"

    Wow was that not the highlight of the night! Dave is going to send me the names of the people he spoke to so I can make some more contact. You know they will be surfing the web and finding HCMA next.

    Thank you Lisa and everyone on the message board! You all make my hard road just a little softer knowing we all make this a better place.

    Anthony' Mom

  • #2
    Wow, Sharon. What a testimony! I know you're so happy right now. Thanks for all you do.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      That is very interesting and exciting. You must feel so good about all your hard work!
      Hey when is the next screening??
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #4
        Sharon, What a wonderful message! You are really making a difference and people are seeing the results. It isn't just a dream, it's really happening. Anthony would be so proud of his parents and all they are doing to honor the life he lived and the joy he gave. Linda


        • #5
          Re: Saving Lives and Making a difference...

          What an amazing feeling that must be!


          • #6
            Re: Saving Lives and Making a difference...

            I suppose this would as good of time as any to post this excerpt from Sharon's latest mailing:

            (btw - this was written as a call to the volunteer base, but it is informative enough that the readers here may want to see it)

            ><> ><> ><> ><> ><> <>< <>< <>< <>< <><

            We had a great time at our Central High School Heart Screening event. Although the event was small in numbers, we were able to train community representatives from 5 states (Montana, Washington, Northern California, and Delaware) on the ins and outs of setting up a community heart screening event. We even found ways to improve our event. We are now setting up our Mountain Pointe High School Heart Screening event. We have more doctors available to be involved in our events, more echocardiogram machines, and our event is done along with the pre-participation sports physicals for MPHS athletes. Last year we did 200 echocardiograms, this year we hope to double that number.

            I hope your schedule will permit your involvement. We could use your help as one of our "regular folk" volunteers. There are many positions available: Registration, Greeters, Patient Liaison, Exam Table Helpers to name a few. Plus, you can help us spread the word. Attached is our new flyer! Print out the flyer, post it, hand it out, email it to your friends, and encourage young people between the ages of 14 & 40 to have their hearts screened for HCM (Hypertrophic Cardiomyopathy) - FREE!

            Let me know if you, your friends and family would be available to help out!

            Date Place
            May 17 Mountain Pointe High School 4201 E. Knox (by Small Gym), Phoenix, AZ
            Saturday, 8:00 am to 1:00 p.m.

            Plus, we have a new promotion page for FREE CPR Training. The Mesa Community CPR Team with Allen Bates (Anthony's Dad) are offering a CPR training program for Mesa, Arizona residents. The Anthony Bates Foundation is an advocate for heart health and heart safety in many ways! CPR saves lives...so can you if you are trained!

            I look forward to seeing you at our upcoming event. Your involvement in our cause will make a difference in many lives. Help us have fun and save lives! Let me know if our calendars match.

            Very Sincerely Yours,
            Sharon Bates
            Anthony's Mom

            (602) 482-5606
            (602) 703-9191 cell


            • #7
              Re: Saving Lives and Making a difference...


              Just wanted to let you know you were part of the basis of my english term paper this semester. I used a lot of your information on the importance of screening when I get the paper back I'll let you know how I did.

              You truly are an inspiration!

              mary s.


              Today's Birthdays