If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

POTS and HCMA

Collapse

About the Author

Collapse

jimmycro Find out more about jimmycro
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • POTS and HCMA

    I just received a copy of a tilt table test and was told I have POTS (postural orthostatic tachycardia syndrome). They did the test because of several passing out incidents. When I asked the cardiologist if this had anything to do with HCMA, she said no. Somehow, this doesn't seem right-does anybody know if this is true? I'm still trying to get to the Cleveland Clinic, but fighting insurance is hard. Any ionfo on POTS would be helpful.
    Jim Crosby
    I wish you enough.......

  • #2
    tests

    Dear Jimmy,

    You may certainly have POTS, and you can search about it on google.com, but wether you have HCM or not depends on your echo results.

    What is your septal wall measurement and your left ventricular wall? That is how you diagnose HCM.

    Take care,
    S

    Comment


    • #3
      Pots

      I definitely have HCM, with a measurement of septal wall at 1.8 (I'm unsure of the other measurement). My question is how does POTS impact the HCM (if it all)?
      Jim
      I wish you enough.......

      Comment


      • #4
        POTS is an form of dysautonimia - it is NOT HCM it is a disease that can mimic HCM - HOWEVER you should not have LVH with POTS. Get a second opinion.
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment

        Today's Birthdays

        Collapse

        Working...
        X