If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

genetics

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • genetics

    [genetics]

    Author: Diane (---.networksplus.net)

    Date: 04-08-02 20:57

    Hi, I've been trying to understand as much about this condition as possible but have questions that maybe someone could answer.

    1) My father had IHSS, and I have been diagnosed with HCM with obstruction. My brother, however, has been screened and appears to be okay. I understand that my children stand a 50/50 of having it but what about my brother's children and grandchildren? Does this gene ever "weed" itself out?

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: genetics]

    Author: Sarah Beckley (---.dsl.mindspring.com)

    Date: 04-10-02 02:37

    Dear Diane,

    IHSS is just another name for HCM.

    Each one of your kids has a 50/50 shot. It is more than likely that your brother's children and grandchildren will not have any HCM, but there is a very small percentage of HCM that "hides" by being carried but not expressed. People work around this by getting echos every 2-5 years or getting a genetic test.

    Your children should be getting echos every 2 years as most HCM appears in the teens and early 20s.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: genetics]

    Author: Sherry (---.ras11.floca.tii-dial.net)

    Date: 04-18-02 20:11

    Sara,

    You mention getting genetic testing done. After my husband was diagnosed, they instructed us to get an echo on two of our children. We also went to a Genetics appt. We were told there are no tests sensative enough to detect this disease yet. My husbands biggest fear isn't of dieing, but of passing this on to our 5 year old. My husbands family seems to have the gene run in his mom's side. An uncle and two cousins die suddenly of unknown heart problems years ago. No one connected this until after my husbands diagnosis. They even took several tubes of my husband's blood to do research on.

    Sherry
    NOTE: This is a post from the previous forum message board.
Working...
X