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Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
I tried searching on the internet for local HCM support groups..(i.e. weekly meetings ) in the Worcester, MA area but could not locate anything. Would anyone have any information on this? I could only find a CHF support group in Boston which is too far away. thanks
Cynthia -
Funny you should ask!
This year at the HCMA meeting one topic for a workshop will be "CHAPTERS>>>how to set up local HCMA chapters"
At this time we do not have any "local" chapters but by years end we hope to. I anyone is interested in volunteering to be a "Chapter Chair person or Co-chairperson" email me.
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
There is a support meeting about three times a year at NEMC for those of us who have ICDs. It's helpful though at an awkward time if you live out of the city (6PM). I think a support group in Massachusetts would be terrific, and I'm only a half hour from Holden in Groton.
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