If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Can my genetic history be regional?

Collapse

About the Author

Collapse

DLCC2 Find out more about DLCC2
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Can my genetic history be regional?

    My husband and I are very curious about a question our cardiologist asked. He asked if any of my realtives were from Louisiana or anywhere close. I said no and asked him why and he said that there were some studies done and they linked a high percentage of people from this area with this genetic disease.

    When I returned home that night and was discussing it with my husband I realized that I was born in Cleveland Ohio and that my grandfather on my dad's side was from Mississippi. Much closer to Louisiana. Since then, I have been researching genelogy for that reason and many more.

    My cardiologist is connected to "The Heart Center" of Oregon St. Vincent's Medical Center, where they have perfected many heart procedure techiniques and that is where I had my heart cath. I value our relationship and am a little leary about trying to find a specialist. He is very attentive a caring person. But his question makes me wonder?

    What do you think?

  • #2
    genetics and doctors

    Hi,

    Well, I don't know anything about that specific region, but it is true that genetic diseases can cluster --usually due to familys staying in the same area. So there is a possibility that there is an HCM cluster in LA --LIsa would probably know the answer to that.

    RE: seeing a specialist. There are many excellent heart centers that do _not_ specialize in HCM or have much experience with it. Your doctor may be fantastic, but that doesn't mean they are HCM-qualified. If your doctor is truly great, he will be happy to have you see an HCM specialist and will help set it up for you. (Doctor-to-Doctor referrals sometimes go more smoothly than others.)

    So if you haven't already talked to Lisa about who to see, now is the time.

    take care,

    S

    Comment

    Working...
    X