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  • Myectomy, diabetic black-outs

    [Myectomy, diabetic black-outs]

    Author: Doris (---.proxy.aol.com)

    Date: 04-04-02 13:11

    My 46 yr. old niece has had a local surgeon (Jacksonville, Fla.) recommend that he let her do a myectomy. She also has juvenile diabetes and blacks out often from letting her sugar low, sometimes several times a week. The last time she was in the hospital even the hospital had trouble keeping her sugar level stable with her sugar dropping into the 20's twice while in the hospital. She is a picky eater and does not like hospital food. She also has an aneurysism on the back of her heart diagnosed when in her teens. Just a few weeks ago, she was told by another doctor that she was not strong enough to go thru a procedure to replace her difibalator with the new dual defib.

    Her 72 yr. old mother is in very poor health but has told her daughter if she has the surgery she will do her best to take care of her post-op, but we are all worried sick about the wisdom of having a myectomy with so many other health problems.

    PLEASE, PLEASE, HELP, if you have any thing at all to offer in a situation like this. The surgeon upon quetioning whether ornot she would survie the surgery replied that "yes, she would survive the surgery, BUT he did not know what would happen afterwards.

    Thanks for any advice at all either at this site or to [email protected]

    Doris

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Myectomy, diabetic black-outs]

    Author: Sarah B. (---.dsl.mindspring.com)

    Date: 04-05-02 00:48

    Dear Doris,

    Your niece MUST speak to a specialist before she does anything. Please have her call the HCMA office ASAP -- (973) 983-7429 to make an appointment to talk to Lisa, the president, so your niece can find out what questions to ask and who to go see. Please do this before your niece goes forward with any surgeries.

    This isn't a question we can answer over the message board and your niece should talk to Lisa directly so that she can get the most accurate recommendations.

    thank you for posting and please let us know what happens. We are all pulling for your family.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Myectomy, diabetic black-outs]

    Author: lisa (208.47.172.---)

    Date: 04-05-02 10:43

    Doris,

    I strongly agree with Sarah...This is not a "typical" situation for an HCM patient and should be carefully looked at by those with the utmost experience. Have her call the HCMA office and set up an appointment.

    Best wishes,

    Lisa Salberg

    President

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Myectomy, diabetic black-outs]

    Author: Doris (---.proxy.aol.com)

    Date: 04-05-02 17:26

    Dear Sarah B.

    Thank you so much for you response and advice. I am contacting my niece's brother in Atlanta, who prefers to distance himself fom the situation, and tell him he MUST get involved. My niece (Debbie) is pushing to have this surgery, but has failed to eat properly three times this week and been found passed out cold from low sugar each time. According to the 911 tech's she has been very lucky so far that she has been found in time to be revived with orange juice (if her mother finds her and can get enough down her to revive her), or by what ever it is they administer by IV. She has had two or three black-outs due to her heart over the last year but there are those of us in the family that do not understand how, l: Her body can handle a myectomy when she has been told she has to many other problems to be able to undergo having the single chamber defibulator changed out for a dual, and 2: if she did survive the surgery but still fails to control her sugar, what would it do overall, and in the meantime this is all killing her mother (who was readmitted to the hospital herself again just this morning with conjestive heart failure).

    It is just a terrible situation and I thank you so much for caring for my family.

    God bless you,

    Doris

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Myectomy, diabetic black-outs]

    Author: Doris (---.proxy.aol.com)

    Date: 04-05-02 17:36

    Dear Lisa,

    Thank you so much for the advice. As you can see from my reply to Sarah, Debbie is pushing to have this surgery done, but her mother is back in the hospital and her brother is on his way from Atlanta. I am giving all this information to him. Robert (Debbie's brother) does not get along with his sister and trys to stay uninvolved rather than anger her (and therefore his mother) but it is time that he steps in or he is going to lose both of them. We are just all sick with worry and I am so grateful to have found your web site and to you for offering your help.

    Gratefully,

    Doris

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Myectomy, diabetic black-outs]

    Author: lisa (---.proxy.aol.com)

    Date: 04-07-02 15:15

    Doris,

    You are doing all you can to help, your family is lucky to have you. Stay in touch and let us know how we can help.

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Myectomy, diabetic black-outs]

    Author: Marlene (---.ip.theriver.com)

    Date: 05-17-02 12:07

    Dear Doris:

    Forgive me for saying this, but it sounds to me like your niece is suicidal. She MUST take responsibility for herself - she is not a child. Perhaps she feels so bad that she doesn't care if she dies in surgery. Maybe that would be an easy out for her. She obviously does not care enough about herself right now - abusing her body like she is. I feel bad for you because you love and care for her so much! Does she know how much you care? Sometimes people just need a real reason to continue living - they feel hopeless. I have been able to find a great deal of hope and purpose in my life from a continuous deep study of the Scriptures and developing a close relationship with Jehovah God. That's the only reason I'm alive today. It is wonderful that you have so much love for her. Keep it up, but do not blame yourself if things do not work out. Your niece must also love herself and care enough about those close to her to take proper care of herself. YOU take good care of YOURSLF now, y'hear?!!
    NOTE: This is a post from the previous forum message board.
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