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HCMA Radio Tour!

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Lisa Salberg Find out more about Lisa Salberg
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  • #16
    HI!
    What a DAY!
    6am in NYC on the streets off tp the studio...then back to back interviews till 10:45! then home for 1 more at 3:00 Friday morning at 7:20 and maybe one more next week.

    Many of these are taped and will air later today and in the next week or 2...In addition the national ones will be kept on file and if HCM ever hits the news they will find us!

    Big thanks to Wendy and the guys at the studio for the help and pointers..
    and a REALLY BIG THANKS to Dr. Martin Maron for hitting the airwaves with me spreading the HCM and HCMA word!

    Best wishes to all,
    Lisa Salberg
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment

    • #17
      Can't wait to see it all - or hear it! Linda

      Comment

      • #18
        OK update
        Albany and CABLE have been reshedualed for next week sometime - I will advise when I know more.
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment

        • #19
          Good morning! it is 6:30AM on Thursday Feb. 27 2003
          I just finished an interview with WWGY in Albany - they had to reschedule me from last week so I did the interview this morning with Don Weeks.
          Later today the Daily Record of Morristown NJ is coming to the HCMA office for photos to run with an article on a recent CDC report that indicated sudden deaths are up by 10% - HCM being one of the major reasons. I will advise you all when the article runs.
          Take care all...and keep getting the word out about HCM!
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

          • #20
            Do you really think there's an increase in HCM related sudden deaths? If so, the next question would be why? Maybe people either don't know they have it and engage in activities they should avoid, or they just ignore the advice of doctors? What's your take on that?

            Reenie
            Reenie

            ****************
            Husband has HCM.
            3 kids - ages 23, 21, & 19. All presently clear of HCM.

            Comment

            • #21
              Someone was awake in ALbany this morning! I just got this email

              "Dear Lisa Salberg,

              I listened to your information on WGY (810 radio) this morning and was very
              interested. I seem to have some of the symptoms but have never been
              able to find out what the etiology has been. Now, my 15 year- old niece
              has similar cardiac symptoms and I am concerned about her, since
              nothing has been diagnosed.
              Thank you for your radio conversation and I wonder if abnormal
              fatigue is also related to this condition.
              Sincerely,
              Nancy "

              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment

              • #22
                Lisa -

                That is so cool!!! I hope that more people who might be in a similar situation find their way here.

                SheliRenee
                Mom of Keanu
                4 years old (will be in March)
                Dx at 2 days old with Biventricular hypertrophy
                Dx at 6 weeks with HOCM
                Dx at 5 months with V-tach
                Dx at 3 with Noonan Syndrome

                Comment

                • #23
                  Way to go, Lisa
                  Reenie

                  ****************
                  Husband has HCM.
                  3 kids - ages 23, 21, & 19. All presently clear of HCM.

                  Comment

                  • #24
                    OK my press events are done for the day. The local papers photographer just left. I really hate having my picture taken. He said he would email me the good ones...maybe I will change my AVATAR (OK I still think that sounds like a mini van!)
                    Best to all!
                    Lisa
                    Knowledge is power ... Stay informed!
                    YOU can make a difference - all you have to do is try!

                    Dx age 12 current age 46 and counting!
                    lost: 5 family members to HCM (SCD, Stroke, CHF)
                    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                    Therapy - ICD (implanted 97, 01, 04 and 11, medication
                    Currently not obstructed
                    Complications - unnecessary pacemaker and stroke (unrelated to each other)

                    Comment

                    • #25
                      Congratulations Lisa! Linda

                      Comment

                      • #26
                        15,638,700

                        That is the final number of people we reached with the radio tour!
                        15 million people heard the words HYPERTROPHIC CARDIOMYOPATHY!
                        Knowledge is power ... Stay informed!
                        YOU can make a difference - all you have to do is try!

                        Dx age 12 current age 46 and counting!
                        lost: 5 family members to HCM (SCD, Stroke, CHF)
                        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                        Therapy - ICD (implanted 97, 01, 04 and 11, medication
                        Currently not obstructed
                        Complications - unnecessary pacemaker and stroke (unrelated to each other)

                        Comment

                        • #27
                          d*m

                          L

                          YOU ROCK!!!

                          S

                          Comment

                          • #28
                            Guess that's something to shout about! Congratulations! Linda

                            Comment

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